Have you been checked for autoimmune disease? http://thyroid.about.com/cs/endocrinology/l/blchecklist.htm Here is a checklist I suggest going over it and if you start getting red flags take it to your doctor and see what they think. Best wishes, I hope you are diagnosed soon, Sissie
thank you so much for responding. I have been checked autoimmune and nothing was found. but, since autoimmune stuff is so complicated i am not 100% confident i dont have an autoimmune disease.
the list was very helpful.
according to the list I could have (4 or more symptoms) in order of most symptoms to least: hashimotos hypothyrodism (8), cushings (6), celiac (6), lupus (4), POCS (4),sjogrens (4).
i looked all of them up and none of them explain all my symptoms. im thinking of seeing an endocrinologist to talk about the thyroid.
thank you for your help.
maybe you should see a rhumatoligist? sorry about the spelling. anyway, i would say you may have a pinched nerve somewhere in the back around your shoulder blades and you could be having some bone necrosis in the hip and rhuematoid arthritis affects the joints and creates inflamation(swelling) and pain. how old are you? do you take vitamins c and d to help you not get osteo arthrits? always take vit.d with c. they work good together! hope i helped.
thanks for the advice, mkwilde091009.
i have seen a rheumatologist and the blood work was fine except the things I noted in my post, like the urine protein (she tested mainly for inflammation problems, including RA, but did not repeat RA factor test..im not sure why...i was tested for RA factor 8 months ago and it was negative). She thought i have carpal tunnel syndrome and some swelling of the knee cap, but 2 other drs and my physical therapist do not think i have that carpal tunnel and the knee thing is just random and probably true but I definitely have other issues as well.
i take vitamin D 2000iu and a women's one a day vitamin which I believe has C in it. i also take 3 fish oil capsules a day and some joint supplement.
last night i noticed a small pale, painless ulcer in my mouth and so now i'm thinking maybe all this is from gluten intolerance, as ulcers are a symptom. i also have long suspected i have "leaky gut" and joked about it but now i am realizing this could be due to gluten and a symptom of a bigger problem. i have never been tested for celiac's. im going to try going gluten free for a while and see if anything gets better and then also get tested for thyroid problems. ive been tested for thyroid problems before (maybe a yr ago) and the dr said im fine. im hoping the gluten thing works but to be honest im doubtful. worth a try though at this point.
is it likely to have bone necrosis in both hips?
thank you so much.
Autoimmune diseases are hard to catch. You may want to post this on the thyroid forum and see what they say. I had symptoms of Hashi's for five years before they caught mine. It can flare up and go away almost on a day to day basis. It would be a good idea to go to a endo. Whatever the cause I hope you get help for it soon. Best wishes, Sissie
thanks for your reply, i will make an apt with an endo.
i am happy to hear you got a diagnosis for your problem. 5 years is a long time to wait. im so discouraged after only 8 months.