Aa
A
A
A
Close
Undiagnosed Symptoms Community
25.3k Members
Avatar universal

progressively worsening symptoms over past 6+ months?

Hi everyone! Hopefully someone may be able to provide some insight/direction. I'm a 27 y/o F with weird symptoms that have led to 5 ER visits and 2 admissions since March 6. My symptoms have been nearly constant, but they definitely fluctuate in severity. At my worst, I was convinced I had a PE, or even a pheo, but obviously those have both been ruled out. I am currently being seen by a PCP and cardiologist for my symptoms, and now have referrals for endocrinology, pulmonology, and dermatology. I apologize in advance for how much is in this post, but I appreciate any and all thoughts!


Current Symptoms
-palpitations
-dyspnea (worse on exertion or when laying flat)
-tachycardia (managed with atenolol)
-significant fatigue, worsening
-night sweats, worsening
-enlarged submandibular lymph nodes
-difficult sleeping
-fluctuating blood pressure (typically hypertensive, managed with atenolol)
-dizziness and lightheadedness (one syncopal episode attributed to dehydration by MD)
-chest pain and pressure (diaphragm area, midsternum area)
-throbbing pain in L leg, R neck (R neck throbbing attributed to muscle spasm by MD)
-rash (small red bumps on arms, back, chest, stomach)
-brain fog
-generalized aches
-reduced appetite
-horizontal "dent" in upper L thigh
-worsened reflux


Ongoing Issues/PMHx
-IBS
-kidney stones (basket procedure x 1)
-duplicated ureter on L kidney
-ovarian cysts (cystectomy x 1)
-headaches and migraines (improved on nexplanon)
-acne
-severe dysmenorrhea (improved on nexplanon)
-depression (stable with therapy, duloxetine)
-anxiety (was relatively stable with therapy, currently worse)
-overweight (190 lbs, 5' 7")

Current Medications
-duloxetine 60 mg
-atenolol 25 mg
-vitamin D 4000 IU
-ativan .5 mg PRN
-vistaril .25 mg PRN
-nexplanon implant

Pertinent/Incidental Findings?
-negative cardiac workup (EKG, ECG, stress echo, cardiac MRI, continuous cardiac monitoring)
-negative COVID PCRs
-clear chest x-rays, CT angiogram, CT abdomen/pelvis
-normal PFT
-elevated D-dimer x 4 (.52 - .96)
-mildly calcified aorta
-mild multilevel degenerative disc disease in thoracic spine
-mild narrowing of L iliac vein, poor phasicity of L femoral artery (not May-Thurner per MD)
-chronic borderline hypercalcemia (10.0-10.8 mg/dL)
-chronic borderline hyponatremia (136 mmol/L)
-low vitamin D (now on supplement per MD)
-negative ANA
-normal peripheral blood smear
1 Responses
Avatar universal
I would get another opinion on May-Thurner Syndrome. Also sounds a lot like Nutcracker Syndrome as well. Have you had a Venogram with IVUS? Maybe join some of these support groups on Facebook as very few doctors seem to  understand these conditions.
Have an Answer?
Top General Health Answerers
363281 tn?1590104173
Nelson, New Zealand
1756321 tn?1547095325
Queensland, Australia
19694731 tn?1482849837
AL
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
In this unique and fascinating report from Missouri Medicine, world-renowned expert Dr. Raymond Moody examines what really happens when we almost die.
Think a loved one may be experiencing hearing loss? Here are five warning signs to watch for.
When it comes to your health, timing is everything
We’ve got a crash course on metabolism basics.
Learn what you can do to avoid ski injury and other common winter sports injury.
Here are the pros and cons of the top fad diets and weight loss plans of the year.