unfortunately i am not diagnosed as anything at this point. i have been in pain for twelve years and it is progressing. i am losing strength in my arms now.
but i have read my x ray report and it says i have pannus on my odontoid peg.
no doctors will help me figure all this out.
so i have to constantly come up with directions to point the doctors in.
i truly believe i have chiari and a syrinx. among other things.
i am trying to convince them to do an mri. i thought the abnormal odontoid would do it. but they just suggested physical therapy which i think could be dangerous.
i thought if i could say that syrinxes were often over looked then i might get their attention.
i am so tired of all this.
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