Aa
unwell for a year
Hi there,
For just over a year i have been unwell and chronically unwell, with too many symptoms to list but a few are. sweats, low grade temp, pink eye, vertigo, blured vision, nausea, loose bowls, rach comes and goes, blood in seman only twice, fatigue, sore throat/joints/muscles, muscle loss including shoulders and pelvis, mouth ulcers/blood blisters, headaches, poor sleep, tingling/numbness mostley in sleep.
I am 32 male was pretty fit and healthy prior to this apart from crohn's which is controlled be pentasa and i had surgery RH Coleptomey 5 yrs ago.
Docs have done many tests on me bloods, white cell scan, x ray, etc all clear. I have seen 5 types of specialists. Can any one help please (I still work but am getting worse and struggling here)
For just over a year i have been unwell and chronically unwell, with too many symptoms to list but a few are. sweats, low grade temp, pink eye, vertigo, blured vision, nausea, loose bowls, rach comes and goes, blood in seman only twice, fatigue, sore throat/joints/muscles, muscle loss including shoulders and pelvis, mouth ulcers/blood blisters, headaches, poor sleep, tingling/numbness mostley in sleep.
I am 32 male was pretty fit and healthy prior to this apart from crohn's which is controlled be pentasa and i had surgery RH Coleptomey 5 yrs ago.
Docs have done many tests on me bloods, white cell scan, x ray, etc all clear. I have seen 5 types of specialists. Can any one help please (I still work but am getting worse and struggling here)
i have dropped coffee, diet drinks ets months ago, doc has just put me on prochlorperazine 2tabs 3 times a day, for nausea and vertigo, hope it helps with anxiety too
Do you drink diet soda, or use artificial sweeteners in your coffee, etc.? All of the symptoms you are describing can be found linked to aspartame poisoning.
check out: http://www.mercola.com/article/aspartame/index.htm
I'm trying to track down symptoms of my own and stopped using aspartame 1 week ago... some things saw immediate improvements, others not. Afraid some damage might be permanent... but doctors say you might need to be off of it between 3 weeks to 60 days before it's really gone.
Best wishes.
check out: http://www.mercola.com/article/aspartame/index.htm
I'm trying to track down symptoms of my own and stopped using aspartame 1 week ago... some things saw immediate improvements, others not. Afraid some damage might be permanent... but doctors say you might need to be off of it between 3 weeks to 60 days before it's really gone.
Best wishes.
I would absolutely question your thyroid tests- get a copy of all lab results for a home file & study up on what they mean and how those levels relate to your body.If you google what lab results mean there are tons of pages to explain each.
Your symptoms sound much like HypER - thyroid.
The squeaky wheel gets the oil - so keep squeaking to your doctors!
good luck-
Your symptoms sound much like HypER - thyroid.
The squeaky wheel gets the oil - so keep squeaking to your doctors!
good luck-
i had a short senathesen test (unsure of spelling) they said cos of long term steroid use for crohn's). I also had two AM bloods before any food/drink
I would consider asking your physician to order an AM cortisol level and/or ACTH level on you. Pituitary / adrenal dysfunction is often common in people who have CFS.
Are you being treated yet ? If so, what treatment plan does your physician have you on ?
yes very weak, along with the fatigue. yes i had a lyme test approx 6 months after i first got sick but not aware of cortisol.
P.S. --- I'm sure your physician has ordered a lyme test on you, but you may want to read about the accuracy of lyme tests.... here's a link: http://www.medhelp.org/posts/show/308924
Do you have any weakness ? Has your physician ordered a cortisol level on you ?
To answer your question, loss of muscle strength can definitely be a symptom in patients with CFS.
is muscle loss a symptom of CFIDS, areas ive lost muscle are bum, back of shoulders/joint, groin and forearms. I also have candida on tongue and at the back raised strawberry colour. Also alot of confussion, vertigo memory loss plus all the symptoms at the top of this thread.
p.s i am getting fat on my belly, chest and back of my neck
p.s i am getting fat on my belly, chest and back of my neck
I was also diagnosed with CFIDS and I can tell you that this condition is real. CFIDS patients' often have low blood pressure, orthostatic issues... sometimes with tachycardia (POTS), low uric acid levels, positive ANA (25% of CFIDS patients' have a positive titer) and a low cortisol and/or hormone levels. There is actually a test that can supposedly diagnose CFIDS, but it is in the research phase. However, Medicare covers the test and it is a national lab. The lab is Red Labs, USA and they have a website for more information if you are interested.
Half of CFIDS patients' have abnormal MRI scans, 80% have abnormal SPECT scans, 95% have abnormal cognitive evoked EEG brain maps. Most have abnormal neurologic examinations.
Well I have had a number of them done all neg. Doc telling me its CFS, i dont buy it. I dont know what to do anymore
Have an Answer?
You are reading content posted in the Undiagnosed Symptoms Community
Discharge often isn't normal, and could mean an infection or an STD.
In this unique and fascinating report from Missouri Medicine, world-renowned expert Dr. Raymond Moody examines what really happens when we almost die.
Think a loved one may be experiencing hearing loss? Here are five warning signs to watch for.
When it comes to your health, timing is everything
We’ve got a crash course on metabolism basics.
Learn what you can do to avoid ski injury and other common winter sports injury.
