Aa
Acute urinary retention
Hi, after following laparoscopy surgery for endo, my bladder went in complete retention. To make a long story short, my gyn refered me to UCLA. It was determined that the gyn at that time severed the nerves to the bladder via laser (i had endo on the bladder). The options UCLA gave me where to get an Interstim device, or like a bladder neck surgery... I chose the Interstim route.
I've had the interstim for 1 year, and in that 1 year the interstim malfunctioned two times. I'm at my witts end with the malfunctions with the interstim. I went back to my uro last week, and he was talking about a more invasive type of sling/bladder neck surgery. Does anyone know about that? I've tried to research it online, and all I found was that it only worked for incontinence, and not retention. Does anyone else have any other advice/opinions?
I'm back to self-cathing, and debating on telling my uro to jsut put a foley in, or just take out the bladder completely and give me a 'neobladder", but he's not willing to do that yet. My bladder is a complete neurogenic,flaccid, 'dead' bladder.
(i'm 25 and dealing with all this).
I've had the interstim for 1 year, and in that 1 year the interstim malfunctioned two times. I'm at my witts end with the malfunctions with the interstim. I went back to my uro last week, and he was talking about a more invasive type of sling/bladder neck surgery. Does anyone know about that? I've tried to research it online, and all I found was that it only worked for incontinence, and not retention. Does anyone else have any other advice/opinions?
I'm back to self-cathing, and debating on telling my uro to jsut put a foley in, or just take out the bladder completely and give me a 'neobladder", but he's not willing to do that yet. My bladder is a complete neurogenic,flaccid, 'dead' bladder.
(i'm 25 and dealing with all this).
Hi,
Thanks for responding back!
While down at UCLA, they did a VCUG, Cysto, and many other tests in order to even see if there was a chance for the bladder nerves to come back alive. They gave me 6 months, and in those 6 months they tried a couple of different meds, and none of them worked.
With in regards to the interstim again, I actually have the syneregy version (2 leads, and 10 wires). I've been meeting with the reps for the past 2 weeks, and the closest they can get the impulses are the tail bone area. The interstim worked in the very beginning, (had a fantastic trial) but once I had the battery implanted, my body started to like reject it (like i say).
I'm going to go back to UCLA to see what they say if anything is out there to help my bladder. I also just had a laparoscopy for endometriosis, and again there was endo on my bladder (front and bottom) and endo also found on the left ureter. After the lap, was when the impulses stopped working. They checked the battery, and the battery is okay. It's just the impulses that don't work.
The reason that I was asking about the bladder neck surgery, was because I think that's what UCLA mentioned to me before, or something with in regards to the bladder neck requiring surgery if the interstim didn't work, or in addition to the interstim.
Hope that clarify's a little bit.
Thanks for responding back!
While down at UCLA, they did a VCUG, Cysto, and many other tests in order to even see if there was a chance for the bladder nerves to come back alive. They gave me 6 months, and in those 6 months they tried a couple of different meds, and none of them worked.
With in regards to the interstim again, I actually have the syneregy version (2 leads, and 10 wires). I've been meeting with the reps for the past 2 weeks, and the closest they can get the impulses are the tail bone area. The interstim worked in the very beginning, (had a fantastic trial) but once I had the battery implanted, my body started to like reject it (like i say).
I'm going to go back to UCLA to see what they say if anything is out there to help my bladder. I also just had a laparoscopy for endometriosis, and again there was endo on my bladder (front and bottom) and endo also found on the left ureter. After the lap, was when the impulses stopped working. They checked the battery, and the battery is okay. It's just the impulses that don't work.
The reason that I was asking about the bladder neck surgery, was because I think that's what UCLA mentioned to me before, or something with in regards to the bladder neck requiring surgery if the interstim didn't work, or in addition to the interstim.
Hope that clarify's a little bit.
MEDICAL PROFESSIONAL
The interstim is supposed to help with nonobstructive urinary retention (i.e retention not related to a sling or masses at the bladder outlet), in a bladder with working muscle, but confused nerve signals. If the INTERSTIM once worked, but has malfunctioned, you may need to have it reprogrammed. your urogynecologist should be able to do that in the office. THere are 4 leads on the INTERSTIM, and the case is another lead. The programmer should be able to change the signals on the leads in order to get it working again. Another rare possibility is that the the device has failed. The programmer should be able to check for device failure as well. If the INTERSTIM never worked, then perhaps your bladder muscle is no longer functional. Putting a sling in does not cure retention. Slings are for stress incontinence due to weakness in the urethra or chronic retention related incontinence (called overflow incontinence). If a sling is put in for overflow incontinence, you will need to self cath multiple times daily indefinitely. YOu should probably have urodynamic testing with emg testing to fully evaluate your bladder function. This should demonstrate if your bladder muscle is unable to contract at all. If that is the case, and you are having leakage, then the sling/cath option may be a good choice. If you have intolerable leakage, there is also another option of a "continent diversion" in which the ureters (kidney-bladder tubes), are disconnected from your bladder and hooked up to a pouch made from your small bowel, and this pouch is then brought out on your abdomen via a small opening, which you can catheterize several times daily. THis procedure is usually performed by a urologist experienced with this type of surgery.
Dr. Hoyte
Dr. Hoyte
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