This is the prolapse Urogyne forum Bobbikey. Dilators and estrogen cream is used for prolapse as well both pre and post surgery for many ladies. I use both the dilator and estrogen cream to maintain the vaginal skin as well as stretch the vagina as my muscles have become too tight in order to exercise and maintain my pelvic floor strength. There are different reasons for the use of dilators. I can see why this has been advised for you to use and you get different size dilators in the kit so you can start really small.
I am not familiar with chemo or radiation in this area but do know of ladies who are unable to have intercourse due to prolapse either pre or post prolapse operation but do feel your condition is worth pursuing with another consultant opinion and also a womens physio therapist. Womens physios can help for all sorts of vaginal conditions and often deal with scar tissue as well with myofacial release and other methods.
I would start by getting a second opinion from a good Urogynecologist and ask questions about what can be done as well as what effect any remedy would have on your vaginal strength regarding pelvic organ support. Ask your GP as well as your Urogyne for a good womens Physo and go step by step in finding the right treatment for you. A plastic surgeon may be a good idea, however, I do feel a Urogyne is the best starting point as they are trained to do operations in this area.
I hope this helps... post your question again on the ask a doctor side of the forum. Let us know how you get on.
Hi. I am no Doctor, but given that they do vaginal reconstruction all over the world, I really don't see how "re-opening" it (through surgery) is something impossible. I am sure you need to see a plastic surgeon and/or very highly qualified gynecologist that has extensive experience. I don't believe your situation is irreparable!
First of all I am very sorry for what you are going through but I do believe there is hope to fix your situation. The first step I would take is to research a good pelvic pain physical therapist. They are specially trained to deal with problems in the pelvic area. There are different modalities that they can use to help you. Then I would try to find a good urogynecologist. I have come across women who had problems from radiation and their vagina so I know there is help for you. Best wishes
Thank you for your concerned & helpfully advise. I will be seeing another gynecologist next week & will request a visit to a urogynecologist & a pelvic pain physical therapist.
Thanks to everyone who responded. Love & light to each of you!
Great news Roberta that you have a plan and will see another gyne plus request a Urogyne appt as well as a pelvic pain physio.
You are on your way to finding the best way forward for you. Each step you will learn more.
Love and light to you also
Hi Roberta. I stumbled across your post while searching for some answers myself. This also happened to me and am desperate to find a way to fix it. I had radiation back in 2015-2016 and was not told anything by my radiation oncologist about this side effect. My husband and I had a very active sex life before the cancer and it is really sad that we have lost this connection. Can you please share any news on your progress?