Wow, a lot going on. Have to say that I'm sorry that you are in this situation. One thing that I think will help is to speak to a therapist. I know that sounds crazy but for two reasons, I think it is an important step for you. First, this is probably a lot emotionally to deal with. You are probably lonely and feeling like a loss in your life. Second, you would be amazed at the psychological ramifications that our body undergoes. That will make anything like this worse. We hyper focus, stress and worry. Been there. So, I'd see what kind of help you can get in this regard to explore how to best handle your emotions surrounding the situation and to see if mental health piece also contributes to it.
When your insurance company says they want you to explore more options, have you asked what options you need to explore? If they are making that statement, there has to be x number of things you are expected to do first. I'd ask for them to be specific so you can do those things. Who knows, perhaps it will uncover the issue when you do those steps. That's the problem though, isn't it? You don't really know WHAT to do to figure this out. You've sought the care of doctors. What is their 'next step'?
For the mean time, don't ejaculate. Find other ways to feel fulfilled. I hate to recommend that to you but it's better than pain. Since chronic pelvic pain syndrome usually comes with inflammation, what about taking an Nsaid? That may help or should. Alpha blockers are another mediation given. https://www.health.harvard.edu/newsletter_article/chronic-nonbacterial-prostatitis-chronic-pelvic-pain-syndrome