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HORRIBLE NERVE PAIN THROUGH MY PENIS!!

I have been suffering with nerve pain since 1993. i have been taking Tegretol to block the pain, but im tired of not enjoying life like a real man should!! i dont have any kind of health insurance to help me out. im really down and out.
the pain i experience with out the meds is F-ING Horrible. i would never move from the couch! back in 93 to 95 my daily routine was stagger out of bed and go pee once and then sit on the couch until bedtime and then go pee a 2nd time. during the day i would use ice on that area as well! i was losing weight just by sitting on the couch. i would love to get off of these horrible meds, but even more so live a normal life!! Can you PLEASE HELP ME BEFORE ITS TO LATE!! THANKS!!


This discussion is related to Penis Injury-Nerve Damage.
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Avatar universal
For number of years I suffered debilitating pain in my penis right at the glans area.
The only relief I could find was laying out horizontally for 20 mins. As a teacher I had to lay out on a table during my prep periods. I accidently found help with a combination of a muscle relaxant (parafon forte) and 1 mg ativan. I use this combo 3 times a day and for the most I'm symptom free. On occasional days I have some minor discomfort but I had not had the excruciating pain since I started this medication combo.  
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Avatar universal
Sorry to hear what you're going through. I'm not a doctor and don't know if you've seen this site and whether it might provide any help in your searching for some kind of answers, diagnosis and treatment. Good luck!
http://www.pudendal.com/
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Avatar universal
I went through every thing that the urologist could do for me. they found nothing. i went through one test by neurologist and could not find anything, but i know its nerve related because the tegretol blocks the pain. i have never had any kind of MRI done down there. you really cant have one done unless you get a dentist to do one down there for you. the other things that let me know its nerve pain is the pain itself. and the fact that i can ejaculate with out even masturbating..meaning that it happens sometimes like a wet dream. i have no control at times. i to can get an erection but that doesnt mean its not a problem with the nerve, because they hold on to pain!
I hope this helps you!
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Avatar universal
Man, sorry for your suffering -  

how do you know what the pain is - that it's nerve damage?  I also have needle-like stings and burning, pin pricks in my penis head - really sapping my energy and patience. I had an electric shock years ago that I felt go through the shaft and knew in my gut it had just done damage. However, I was told by Neurologist that if I can get erection still localized nerve damage was not possible. Others told me such a shock not possible. To this day, I have trouble with these random pains and abrasive-to-touch feelings - all impossible to ignore. Pleasure still possible but it gets crowded out by the discomfort most of the time.

I have taken Gabapentin but not enough to know if it will work long-term. The pain in my case is not severe.

So, I'm curious how you diagnosed / decided what was wrong?  What tests have you done, etc?  What did neurologist say?  Urologist?

Andrew
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