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Person with CP feel urge to urinate with suprapubic catheter

My uncle has Cerebral Palsy (he's very wheelchair bound, spastic and mentally disabled) and started having incontinence issues at 50, he also found it difficult to urinate although he felt the urge to.  So a urologist put in a suprapubic catheter two months ago.

He's felt the constant need to urinate and somehow squeezes out urine via his urethra.  We started a reward challenge to encourage him not to do this in case it's just based on habit and a GP prescribed Librax.  This is working, but not all the time.

He's had good days where there's been no leaks via his urethra, but some days or nights he manages to wet himself completely.

We're not sure if the sensation of the foley catheter is causing the urge to push or if procedure of inserting the catheter could be incorrect, like not being in a spot - like a little too high up where it doesn't drain before he can even feel the urine in his bladder (the specialist double checked and a nurse confirmed everything seems fine with no blockages or infection).

We're feeling very defeated and he's weak after the operation so we hope there's not another procedure required to supplement/correct this.  At the moment he's on nappies at night and some days he asks for it too.  

Please help with any info...

Thank you so much



1 Responses
207091 tn?1337709493
Did someone tell you to do the reward system? I just wonder if you're telling him to hold it when something physical is happening and he can't control it.

I don't know all the issues with his CP, but what if he's just incontinent and he is physically unable to control this?

If he's having spasms - and I'm not a CP expert, far from it - but could he be having spasms in his bladder that are causing this? This shows high levels of incontinence in adults with CP - https://www.ncbi.nlm.nih.gov/pubmed/23978464

There's something called neurogenic bladder, which is when people with other disorders lack the nerve control or have nerve damage that makes them unable to control the bladder:

https://onlinelibrary.wiley.com/doi/full/10.1111/j.1469-8749.2012.04363.x

https://www.urologyhealth.org/urologic-conditions/neurogenic-bladder

I'm sorry you're going through this. I'm sure it's really hard. I wish the best for you and your family, and your uncle.
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