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Please help concerned Mom !!!

My daughter  (23 yrs. old), has been suffering with severe lower pain for the past few years. She has seen several doctors, and has had all kinds of tests.
They started off by telling her that she had cysts. So...they removed those.
Fooled around with the birth control pills she was on...tried others. Pain still there.
(Put in an IUD.)
Then they decided that she had kidney infections. Dealt with that. Pain still there.
(Had her appendix out years ago...so we know it's not that.)
Now, the latest....bladder infection & blood in her urine. She was in hospital for weeks. They decided to give her meds, and, naturally, pain pills. (Which we aren't thrilled about.)  Removed the IUD. And cauterized the bladder.
She was having problems voiding, (Was starting to look pregnant) and ended up with a catheter. Once it was removed, she couldn't void. They decided to send her home and she was told to self-cath (CIC).
Our entire family is worried. No one seems to know how to find her problem.
She is still taking pain pills and sleeping with a heating pad.
Is there a list of tests that I can suggest to the specialists, that they may have overlooked ?
(She is now being told that she has cystitis.)
Are there any illnesses that we can research that she could be dealing with ?
We've done the second and third opinion route. We realize that specialists are very busy and can't afford to spend all of their time on one patient. That's why I'm resorting to this HELP BOARD.    
PLEASE HELP !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
She can't go on living this way. And we're all concerned about her health. If we don't find out what's wrong NOW....who knows what permanent damage it could cause her.
We HAVE TO find her help ASAP !!!!!!

Concerned Mother....Anne99
3 Responses
Avatar universal
PS....Oops....almost forgot to mention....there was also a surgery to remove stones.
(That was done before the last bladder/cystisis thing.)

Concerned Mother....Anne99  
Avatar universal
PLEASE HELP !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! I NEED ANSWERS!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

SUGGESTIONS  !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

ANYONE OUT THERE ?!     DOCTORS ?!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

NURSES ?                Other patients that have been through this ?

URGENT !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Can't wait !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

PLEASE !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Avatar universal

As your daughter is only 23 years old, it would be better to have certain tests done to rule out the possibility of any autoimmune disorders causing neurological pain. This will need to be evaluated by a neurologist who can also assess the cause of her persistent pain.

She appears to have gone through a lot of medical and surgical intervention in a short span of time and her body would still be recovering from the stress of it all. This would increase the time her body would take to recover and could partly explain persistence of the pain. She needs supplementation of essential micronutrients and omega-3 fatty acids to help heal the injured mucosa and to restore nerve function, though this may take longer.

Self-catheterization is obviously not a long-term option given her age and it would be better to explore options, such as indwelling urethral stents, for helping her void, if her problem is due to an overactive sphincter. If she is unable to appreciate the sensation of bladder filling, it would be difficult to correct the problem. There are few cholinergic drugs that can help with stimulation of effective voiding, but these have their own set of associated side effects.

There are other measures for pain management, such as TENS, but they will need to be evaluated based her current state of health.

Would it be possible to update her current symptoms and the medications she is on, plus the interventions and all procedures that she has undergone (other than that mentioned in your post here) along with the results for her blood tests and other investigations?

It would help to get a better idea of what she may be having, and could help with a more specific response.

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