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Urinary urgency, frequency and retention

I have joined this community, truly feeling desperate. For more than 2 years, I have been unable to sleep more than an hour before I am interrupted by my bladder - strong urge, spasm and discomfort - so severe, I am awakened. This began when I purchased a new home and in retrospect overdid it physically and multiple injuries have been found in my spinal cord. None of these injuries are I the area known to control bladder function however. I have spent a small fortune getting the house  inspected for any toxins, allergens, molds, etc. it is truly pristine. I have also visited 17 different health care practitioners including alternative health. I have had a sacral neuromodulation device surgically implanted and had a few weeks of 2-3 hour increment sleep during the trial device period, thus insurance and doc approved the permanent implant. Since getting the permanent implant, daytime is great (my bowel movements are even incredibly regular for the first time in my life - sorry for graphic detail), but when I lie down at night, the nightmare begins. I regulate my liquid intake, I eat very healthfully, I keep regular hours, alcohol almost never, I am normal and healthy weight, no smoker, not diabetic.  I am a TBI survivor, but it was 11 years prior ago and though it had been severe at the time, I had regained full functioning and my life was thriving until 2 years ago. This has gone on so long, my work life is affected as I am so exhausted all the time; my personal relationships are 'nil because I am on edge and cognitively not the person I used to be. My life is not my own. Has anyone experienced anything like this ? Any guidance?
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11432871 tn?1418660660
look into IC "painful bladder syndrome" i just found out i have it and i have a lot of the same issues as you
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Avatar universal
I completely understand what mean about your life not being your own and not being the person you used to be. People who haven't experienced extreme nocturia do not truly understand the debilitating effects it has on your personal life, professional life, and your overall physical health. I have been dealing with it for over two years as well. I'm exhausted, depressed and irritable just about all the time. I can't concentrate, focus or think clearly. I used to be pretty sharp. Now I worry about making mistakes and getting fired from my job. I found out earlier this year that I had a urethral stricture, contributing to the bladder frequency and urgency. I've had two surgeries since the diagnosis. Still recovering from a Urethroplasty done about seven weeks ago. I hope you find some answers and some relief soon.
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Avatar universal
Do some research on DMSO
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