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385668 tn?1301797480

nervous15

I am frantic about microscopic blood in my urine.  I have incontinence so I was referred to a urogynecologist.  She catherized me and took a urine specimen from my bladder.  I received a call from her office stating that I had to come in for a cytology because of the blood.  Also a scope to see inside my bladder.  Also I am set up for  a CT scan of the bladder and kidney.  Inicially when I was examined the DR. said that she wasn't concerned about cancer......but NOW I have a trace of blood!!! and ALL OF THESE TESTS!!!  I am scared like crazy.   Could someone shed some light.


Nervous15
19 Responses
Avatar universal
I don't know if I can shed some light but I'm in the same boat.  I had microscopic blood show up in a routine urine test.  They did a culture and it was negative so of course I painic and think cancer.  Went to urologist last week and are having all the same tests done as you but also a test called urine FISH.  My dr. said not to be nervous.  Is that just a typical reply for them?  I'm 37 and healthy.  I have a 4 month old and scared to death about all this.  Your's could be an infection or maybe kidney or bladder stones. I'm trying to stay calm until the tests.
Keep you in my prayers.
385668 tn?1301797480
Do you have trouble holding your urine? Also do you wake up at night using the bathroom to urinate alot?  I am so very scared as you are.  I am hoping that our tests come out good, with nothing to worry about.  Now let me ask you, you said your culture came back negative....isint that a good thing.  They told me not to be nervous also, but as you I think they say that to everyone.  I am trying to keep calm myself, but I been crying most of the night.   Tell me do you have any other symptoms or signs?

You are in my prayers also...
Avatar universal
My culture came back negative so that means no infection.  If it's not an infection what can it be?  I was hoping to take some antibiotics and be on my way.  Prior to my urologist appointment I had no other signs but the last couple of days I've notice some pelvic pain and lower back pain. I know noticed some small clots in my urine. SCARED!   I don't urinate a lot.  I feel normal.  My CT scan is Friday and I'm so scared they'll call that afternoon that they found something.  I have to start thinking positive but it's hard.  Did they do a urine culture on you?
385668 tn?1301797480
Today i had an appointment with my urogynecologist regarding the microscopic blood they found in the sample.  Believe me all last night I cried and shook.  When I went today, I thought they were only going to ask me for another urine sample to test.   As it turns out they did a proceedure on me call a cistoscopy ( i don't know if I spelled that right).  What the Dr. did was insert a catheter into my bladder to drain it.  After it was drained the Dr. inserted a scope with a camera on the end into my bladder to view it.  Guess what?  I seen everything , and my bladder as she put it was smooth as silk...no polups, no tumors, no stones, no nothing.  I was soooooo relieved.  HOwever, I have appointments to have my kidneys xrayed to see if they are ok, so I am still scared but not as much as last night.  Omg what a difference a day makes.  I just hope to GOD everything else turns out ok.   I hurt alot when I urinate because of the scope, and I am bleeding a little. Also my back is hurting down towards my kidneys....I hope i dont have any trouble there.  What is your CT scan for, your bladder? kidneys?  I know this is hard to do but we both have to try and remain as calm as possible.  It is best to get all of this done, so our minds can relax.

I said a prayer for you last night.  I just KNOW everything will turn out ok for you.......and hopefully for me also

Let me know whats going on

Nervous15
Avatar universal
Thank you so much for the prayers.  They can do wonders!!  I'm so happy for your good news.  That's wonderful!  Did the dr. say were the blood may come from?  My CT scan is for kidneys and bladder.  I have that cystoscope in 2 weeks.  Did it hurt?  I'll keep you posted.  So happy for you.  I know you must feel so much better!
Anne 919
385668 tn?1301797480
Don't worry hun, the cystoscopy didn't hurt, and it only took about 10 minutes total to do.  My next test is a urogram CT, is that what you are going for?  

I hope we will both be happy with the results, and I am telling you that i am still very scared.  They DONT know where the blood is coming from, thats why I am still worried.  That blood has come from somewhere, I know that.  

Lets keep in contact

Still Nervous15
Avatar universal
I'm glad the cystoscope isn't bad.  I had the CT on Friday.  They took pictures with and without dye.  Then they sent me in for regular x-rays which I didn't think was part of the test so I got nervous that they saw something.  They said I can get the report myself this week.  My cystoscope is next monday.  How have you been feeling?  This weekend I started with lower back pain and some burning.  I didn't have any symptoms before.  Now I don't know what this is.  I saw you asked about blood work.  I know testing creatine has to do with kidneys.  They said my levels were ok.

Keeping posted.
Anne919
385668 tn?1301797480
I hope everything is great with your tests.  I am scheduled for my uroscan on Tuesday.  Is that what you had?  I had ok lab tests also.  I am so scared they are gonna see something I dont know what to do.   I hope that everything is ok for both of us.  This is so scary do you agree?  

The cyctoscopy wasnt anything .  It was very simple and very fast.  No prepration and it took all of about 10 minutes.  The peace of mind one could have in 10 minutes is unmeasurable. Unbelievable.

Tell me about your CT scan.  What did the die feel like.  How long did your test take.

Hope to hear from you soon.

Still Nervous15
Avatar universal
You are right this is scary.  We have to hope for the best.  It's good news that your cystoscope was fine.  That's my biggest concern.  I think the uroscan is the same as the CT scan.  The whole thing was about 20 minutes, not bad.  First thet gave me a saline iv that wasn't much.  I guess it flushes you out.  Took some pictures then put in the die.  The die just makes you feel very warm inside for like 10 seconds, not bad at all.  Then more pictures then I had to wait 10 minutes and more pictures.  After they sent me too get regular xrays done but I don't know why.  I can pick up the report this week.  Do I want to read it??  This worrying is taking too much of my time but it's hard not to.  Let me know how you make out with your scan.  Did you have a urine cytology done?  That's when they look for abnormal cells.  I'm waiting for my results on that.
Take care!
Anne919
385668 tn?1301797480
I left a urine sample for some testing.  They made me wipe myself with a towelette then let some urine fall in the toiloet then leave the specimen.  If that is what you did I guess I probably had one of those tests.  Man this is scary stuff, however I agree with you the amount of time worrying is taking up to much of my time.  I think about it constantly.  I am glad you told me about the urogram, I was worried how that was done.  Thanks for explaining to me.    

When is you cystoscopy again?  I thought it was coming up.  Don't worry about that test, its easy.  I am certain that you will be able to relax once you get your CT results.  If everything looks in order there, I am certain your cystoscope will be normal.  Keep me posted as I will you


Big hugs...
Still Nervous15
Avatar universal
How was your urogram?  I said  a prayer for you last night.  I picked up my urogram report today and everything is normal thank God!  It did say I had an "incidental cyst" on my left kidney.  Of course I checked the web and that can cause blood in urine but is really no big deal.  I hope that's it and nothing wrong with my bladder.  The cystoscope is next Monday.  I feel a bit better since seeing that report.  Hope everything worked out well with your test.
Keep me posted, we'll get through this!
Anne919
385668 tn?1301797480
Hi sweetie.  I am so glad your CT scan came out well, thats a BIG thing.  I am so certain your cystoscopy will be fine also.  Thanks for the prayers.  I had my CT yesterday.  It wasn't bad, the only thing I didnt like was the extreme heat when they put the dye in.  Other than that it was ok went to work right after with no problems.  One thing we can both say is that we aren't allergic to the DYE  LOL.  I asked the people what if anything they could tell me about the xrays and of course they wouldnt tell me.... so now I wait for the results.

I will keep you posted ....and I can't wait until we can both breathe a total seigh of relief...I pray that its coming soon.

Still Nervous15
Avatar universal
Hi, I had my cystocopy on Monday and thank God everything is fine.  All my tests came out fine, don't know what is causing the microscopic blood.  Doctor didn't seem concerned and I go back in 6 months.  You're right, the test wasn't bad at all.  Now I can take a sigh of relief!  Did you hear anything about your CT scan.  Hope all is well!
Keep me posted
Anne919
385668 tn?1301797480

i am so glad to hear that everything went well, i knew everything would be great.. Well as for me, i STILL havent heard a dam thing.  Needless to say I am so over this stuff....sick and tired of it all.  I just survive and thats it.....so again as I am certain you could tell, my stress is at a 10 as always.  I will let you know what happens when I know....

Yet and Still absolutely Nervous15
385668 tn?1301797480
Well I got through this hurdle, but several more to conquer.  They said my urogram was negative...Yippee....now back to earth I have another horrible problem....sleep apnea...so consequently I become bradycardic do to low oxygen levels...sooooo what that means is I could die in my sleep, and I live alone  wow, how lucky am I?  Now I will wear a 24hr monitor to guage how my heart acts during the night... so you see the fear NEVER leaves me.  You are lucky now you can go back to your life in peace.... I have no Idea of what that is....

Thank you for your kind words and support....stay in touch

Nervous15
Avatar universal
Glad that your urogram was negative!  How did you find out about the sleep apnea?  I actually have other problems too.  I developed toxemia with my son and been having blood pressure problems plus anxiety ever since.  i have a dr appointment monday and scared to death.  Last time I got so scared my bp was 180/110.   i'm trying to stay calm but I developed a phobia.  A couple of years ago I had to wear a 24 hr monitor too.  My husband says I've had more tests done in the last 10 years than some 80 year old have in a life time!  Several years ago my dr wanted me to go for a sleep study and I never went.  Keep me posted and I'll keep you in my prayers.
Anne919
385668 tn?1301797480
I know how you feel .  I also have blood pressures like that when I go to a DR, have a test, have a surgical proceedure, etc etc etc.   I to have alot of anxiety, whih I believe precipitates my bouts og hypertension.  I have been on meds for  high bp for tens years now.  As you I have had more tests than the law allows, I am frantic and pre-occuied with my health.  What are you going to the Dr for Monday?  I have an appointment with the Cardiologist that day to see about my very low heart rate.   God I wish you and I could forget about all that ails us and just enjoy our lives.

Keep me posted also.....and my prayers are with you too

Nervous15
Avatar universal
My dr appointment on Monday was to check BP.  This time it was only 150/90 when I got there then went down to normal.  My dr. said it's all in my head.  I've been to a cardiologist too and he said my heart is healthy.  How was your check up?  Maybe you BP meds are too much causing low heart rate. My dad's heart rate would go down to like 48 or 50 beats per minute and they switched meds.  I have become pre-occupied with my health too but I'm getting better.  It does no good to worry, only causes more anxiety.  Hang in there!

Anne919
385668 tn?1301797480
Well Anne, I wernt to the cardiologist today and he stated all my tests were good and I will live to bean old lady....so he says.  He told me to go ahead with the surgery I need that my heart is very strong.   I asked about the heart rate and he is not very concerned.  I asked if I should get a holter or a sleep study ...he has given me referrals for both, so back to testing I go.  I am so damn sick and tired of all this.   Wish me luck...I will keep you posted.   Oh by the way , even anxious my pressure was 130/82.  go figure.

By the way how are you and your family doing?  I hope you are doing well, I am glad we started to communicate.


Nervous15
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