I had an EMG (Electromyogram) test done about a year and a half ago and the neurologist said that the nerve signals were getting to their destinations but he wanted to send me in for an MRI to see why my hands were tingling. He didn't know why I had so much breast pain so he just disregarded that and wanted to focus on my hands. My breast pain was so so so much more annoying and disruptive than my tingling hands and feet so I didn't have the MRI done because too much of my free time was already being spent going to Dr after Dr to find out how to stop the breast pain.
None of the Drs were helpful. They didn't know what it was but they all just told me what it was not and that it was not something they specialized in. An endocrinologist did a blood test to test for B6, on my suggestion, and said that the result was "46." I don't remember the units and they never told me what a normal range was, only that they weren't alarmed by the number but that my symptoms were definitely neurological. I have a friend who is a nurse and she said that a blood test would probably not be reliable anyway because she said the B6 would be in the nerves or stored in fat cells, not the blood. The endocrinologist was who referred me to the first neurologist who wanted to waste my time fixing things that I wasn't as bothered by.
One breast surgeon did use just a bobby pin to move around and ***** me to see if I felt all the pricks. I did. My problem has been TOO much sensation, rather than any numbness. For example, I have eczema and I have always had dryness after a shower or a day at the pool, but in places where I have B6 pain/damage, the pain from the dryness is excruciating.
Thanks for the link. I, too, love watermelon and have found that it causes my B6 pain to get temporarily worse. Luckily (sarcasm) I'm also mildly allergic to it and have an allergic reaction so I don't allow myself to eat it very often or in large amounts.
The majority of useful information that I've learned about B6 toxicity has been here on this medhelp.org
site on our discussion topic. My (no medical degree here) understanding is that all people can't metabolize too much B6 (like from supplements). Some people's bodies can't get rid of the excess as well as others' bodies can (that's probably why the digestive enzymes are so helpful for us) so we're even more prone to getting B6 toxicity. And that the B6 causes some type of damage to the nerves. Especially wherever there is injury. My guess is that it converts into something and repairs nerves. If you take it when you have nerve damage somewhere, then those new nerves in that area regrow and have extra B6 (or whatever it turns into when digested) in them.
My symptoms are very slowly improving. Very slowly. There is a light at the end of the tunnel, although it is a very dim one. I used to be in constant excruciating pain. So much so that it was distracting and I had a hard time doing anything other than sitting in the fetal position on my couch and being miserable. I got B6 toxicity in pregnancy, so I had a newborn and then was in extreme pain all the time. Now, I'm only in low constant pain. I wear two tight bras all the time and the compression lessens the tingling so I'm rather normal and functional unless I get wet (shower, out in pouring rain, or go to the pool). At the pool, I wear a T-shirt over my two bras instead of my usual bikini top. I used to be in unbelievable pain if I ate many foods. Now, I can have some of them in moderation, especially if I haven't eaten a lot of other B6 foods that day. I'm really hoping that by next summer I can wear a swimsuit like normal people. I'm really hoping there will be a day again when I can comfortably just wear one bra. My wardrobe is restricted to loose blousy T-shirts or oversized sweaters because of all of the bra straps.
Are your symptoms going away? How long has this road taken you?