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Avatar universal

Bone & Joint Pain after starting Vitamin D

My Vitamin D level was 23 and my doctor suggested taking 1000IU of Vitamin D a day. When he rechecked my levels my D level moved up to 30. He stated that he would like to see my levels higher, but oh well. After some reading, I increased my Vitamin D to 5000IU 3x a week or 15000IU a week. This increased my vitamin D level to 40. I now as taking 5000IU a day/35000 a week.

I have been so week and unable to do small tasks for years now. I just am wishing to have the old me back. I wish I could go into the sun but I have dark spots on my face and arms that get very dark with any amount of sun, even when I use a 50SPF block. My weakness and removing myself from the sun seemed to come about the same time. As before I lived on a island in the caribbean and am sure I received plenty of sun and vitamin D.

Now, after the increase of Vitamin D my bones esp back & hips seem to really hurt. Could the vitamin D cause this? HAs anyone else have this happen when they started taking larger amounts of Vitamin D?

Thank you for any suggestions or comments
21 Responses
Avatar universal
It 'might' indicate that the supplement is responsible... but it can also mean a plethora of other things... such as:
that your body is adapting to increased Vitamin D intakes, and that passing lower levels into the higher range could be associated with pain in the bones/hips because they could be regenerating (regeneration of certain areas of the body could be associated with pain/discomfort at times).

Vitamin D is important for bone health (among other things), so its possible that regular intakes of the stuff could be affecting you this way, especially after being deficient for some time (which means your body is adapting and the pain is simply a temporary byproduct of increased D intake).

Each person will react differently due to their unique biochemistry.
Also keep in mind that your body is constantly adapting to new environments, hence different environmental stimulus (such as Vitamin D supplementation) can affect you differently (when compared to how it did in the past).

If I was in your position, I would continue to take Vitamin D in current doses of 5000 IU daily.
At this point I doubt its responsible for your bone problems.

It is also possible you might be lacking in magnesium or some other minerals that could be contributing to your bone problems (rather than Vitamin D being the cause, plus the body does use magnesium to utilize Vitamin D in the first place, so it might be depleting its reserves, which could be associated with bone pain).

Perhaps it would be beneficial for your to switch over to consuming more yoghurt for example (probiotics), as well as foods rich in magnesium and other minerals you might require.
1415174 tn?1453246703
Hi and sorry you are having these problems. Actually the normal range for vitamin D is 30-80 so you are actually in the normal range at 40. The doctors like you to be at about 50-60 for bone health but if you are in the normal range it shouldn't give you the problems you are talking about.  I take 4000IU a day stay at my normal range so it is ok to continue taking your 5000 IU 3x a week  You should get retested in a few months to see if you are stabile with that amount. No I haven't had the vitamin D cause me to have achy bones however when I had my first hip Xray I found  I have mild osteoarthritis. So I think the osteoarthritis I do feel aches in the hip bones. I had a lot of fatigue as well and found out last year I have become hypothyroid. So I don't know if you had your thyroid tested or not? If not it would good to check and get a hip Xray to see if you also have osteoarthritis. That may be the culprit. Even mild osteoarthritis can cause some pain. I really don't think it is the vitamin D doing it. After your test, You will want to keep up your daily vitamin D, probably around 4000IU. This will help with bone density as well and calcium absorption. You only need a maximum of dietary and supplements of calcium of 1000mg a day or you can get kidney stones etc. The important thing is the vitamin D will help you absorb it correctly. Yes I only needed to take more vitamin D this year. But then I also got a bone density that showed I had osteoporosis in my hips. I am only 51 so the doctor really increased my dose in order to increase the calcium absorption. My main pain is from the osteoarthritis though (not the osteoporosis). And fatigue from the thyroid. Hope this  helps.
7831927 tn?1397164363
hi
maybe this can help you. I found an article in the internet about Vitamin D.

Vitamin D

Vitamin D is a fat-soluble vitamin. Its main job in your body is to maintain normal levels of calcium and phosphorus. Vitamin D helps your body absorb calcium, keeping your bones strong. Working with several other vitamins, minerals, and hormones, vitamin D helps bone mineralization. A deficiency in vitamin D can cause the bones to lose calcium and become more susceptible to fracture. This vitamin prevents two bone-weakening diseases: rickets in children and osteomalacia, which causes muscle weakness and weak bones in adults.

Your body makes vitamin D when your skin is exposed to ultraviolet rays from the sun. The amount of exposure depends on where you live, the time of year, the time of day, cloud cover, and whether you wear sunscreen. Generally, 15 minutes of sun exposure, without sunscreen, several times a week is sufficient for your body to make the vitamin D it needs. Sunscreen with a sun protection factor of 8 or greater will block the rays needed for making vitamin D. Experts say, however, that it's important to wear sunscreen whenever you will be in the sun for longer than 10 to 15 minutes.

You can boost your vitamin D supply by getting enough in your diet. Good food sources for vitamin D are those fortified with this vitamin, plus fatty fish and fish oils. Milk is one of the major fortified foods; one cup of milk provides about a fourth of the vitamin D an adult requires. Other milk products, such as cheese, yogurt, and ice cream, usually are not fortified.

How much: Assuming minimal sun exposure, the 2010 Dietary Guidelines for Americans recommend that adult men and women younger than 70 get 600 IU a day. Over age 70, men and women should get 800 IU a day.

The risks: Too much vitamin D can cause nausea, vomiting, poor appetite, constipation, weakness, and weight loss. An excess of this vitamin can also raise the level of calcium in the blood, which can cause mental confusion and abnormal heart rhythms. Unless you consume large quantities of cod liver oil, it is unlikely that you will get too much vitamin D from your diet. Vitamin D toxicity comes from supplements. The Institute of Medicine says that the safe limit for vitamin D intake is 1,000 to 1,500 IU/day for infants, 2,500 to 3,000 IU/day for children 1–8 years, and 4,000 IU/day for children 9 years and older and adults.

Some experts worry that people who take vitamin D supplements and consume foods like beverages and cereals with added calcium may develop calcification in heart tissue.

1 Comments
Or check this article out.  http://www.raysahelian.com/vitamind.html
Avatar universal
I have been hypothyroid for a few years now and that is also something I struggle with on a daily basis. I recently had my dose lowered by my doc--even after I protested. Their decision was based  on numbers. 2 months later and much suffering they checked my levels again and all my levels were off. They apologized and stated that I have to be feeling terrible. Ugggh. if only they knew. And 10lb gain in weight as well. So hard to lose and so easy to gain. I wish they taught listening in medical school. Because the patient often can give clues to what the problem is.

IT seems I fell apart all at once, as soon as I returned to the USA. My lifestyle did change drastically--out of the sun, less activity, food and so on. But shortly after I started feeling sick with no energy. Diabetes, hypothyroid, IBS and water retention.

Knowing my vitamin d level is low at least now not optimal I was searching for something that might make me feel better.

Thank you for your words of wisdom.
1415174 tn?1453246703
I can truly sympathize with you. Although I have to say when I said to my doctor should I go up on the thyroid he said I don't know how do you feel. So he does go by symptoms a lot. But then he wanted me at 1.0 but due to the bad bone density he changed his mind because if you get too much synthroid then it can also cause bone loss. So he had to stop at 2.5 . I am still tired. So I get retested again in April and I'm sure it is off. He said takes time for the brain to catch up with the thyroid. So I hope he will up the dose again. Apparently you need to do the same. Yes activity can help. I started walking and am just doing 2 miles a day. I find the less active the more my back hurts. So I hope these things will help you. Let me know how things go. I think even being outside is good for the mind too despite the vitamin D. It is an antidepressant so to speak. I feel better when I am able to be outside more too.
mkh9
Avatar universal
I hate going to new drs but for many reasons this one isnt the right one for me. The last dr I had thought I was a drug user or something. I guess because I appeared so tired and my eyes seem to be red much of the time because I dont feel well. HE asked to check my kidneys and when I arrived at the lab I was watched going to the bathroom for a drug screen. I wish he would have atleast told me. All was clean as I cant take a tylenol without getting drunk. Just rubbed me the wrong way and he never tested anything else.
1415174 tn?1453246703
I can't believe he did that. But that has happened to me  a number of times when I had asked for pain meds when I went to the ER for abdominal pain and vomiting due to a migraine that I was getting at the time. They withheld all treatment for hours until the drug screen came back. One time my potassium dropped and they had to give me a bag of potassium. It was terrible. Definitely move on from a jerk like that. I'm sorry that happened to you. Best way to find a doctor is through a friend. Of course you looked tired and red eyed you were ill, duh. Also, bring someone with you because they seem to treat you better when you have a person with you. I don't know why. At least on the first visit. Anytime I don't feel well I try to bring someone to take notes or at least to listen.
take care,
mkh9
Avatar universal
I have also experienced terrible bone pain when starting D therapy. I was at 19 at dx and now 5 months at 47 am still having issues. Before starting D I felt achy all over with flue like symptoms, very weak, anxiety, trouble focusing, etc.  It's only when I started D is when the actual PAIN started.  I have recently discovered after stopping D a week before a blood draw to check my level, that the bone pain has lessened and almost gone. I never had the bone pain until after starting D supplementing. Now Im wondering if it's a reaction to the D3?  Also still having foggy moments, eye issues and hair loss. Improvement overall tho. Anyone have input with their own experience?
Avatar universal
Hi, I am having same problem.first my hand finger got stiff.and were hurting like achy pain.and pain I. Joint. It is started after my dr.put me on vitamin 3 50000iu. It started after that. I was perfectly fine before.now I am so depressed that I have to see rhumotogist.they are running all the blood work.my ana got 1.161 .before a month it was 1.80.sed rate went up to 37. So nervous.waiting for other blood reports until friday.but I think its all due to d3.I took 7 capsules for 7 weeks.not taking the last dose.my knees legs are heavy.and stiff.please prey for me.
1415174 tn?1453246703
A lot of things make your sed rate and ANA go up. The sed rate goes up anytime there is inflammation in the body. By itself it doesn't mean you have an autoimmune disease.

Antibodies develop in our immune system to help the body fight infectious organisms. When an antibody recognizes the foreign proteins of an infectious organism, it recruits other proteins and cells to fight off the infection. This cascade of attack is called inflammation.

Some autoantibodies are normal and this may be a false positive result.

Some diseases like Lyme can be positive when you have a Positive ANA, so it may not always be autoimmune disease causing this too. Also, some medications cause a false positive ANA.

Then, a real positive ANA for autoimmune disease isn't just positive for Lupus it could be a variety of autoimmune diseases. It is way too early to determine anything.

What is the normal range for your ANA?

mkh9

Avatar universal
I have also experienced a lot of pain after starting the vitamin d supplements.  I'm experiencing pain in areas I never had before. In fact I really didn't have any pain when I was diagnosed with the vitamin D deficiency (level of 16ng in May 2015). My symptoms were more about fatigue and low immunity to colds, flu, etc.

I eventually stopped the 50,000 IU D2 after 6 weeks because I felt so awful.  I stayed off for a week or so and the pains went away within about 3-4 days. Then I started taking 5,000 IU/day of D3 and the pains came back within a week or so. I stopped and the pain went away again.

At this point I'm just trying really hard to get as much vitamin D as I can from the sun (without burning of course), but I'll need to start supplements again as winter gets closer. When I do start again, I'm going to try to ease into them and possibly avoid the onslaught of sore muscles and joints.
1 Comments
Hi I actually read somewhere that the bone pain is from calcium that has gone into your muscles (from Vit D deficiency) and then going back into your bones.  I never had that much bone pain before - I was at 18 but I was tired, foggy, hair loss.  Since taking more vitamin d the bone pain and like tingling in my shins a lot.  I am assuming its good and our bodies are repairing but i feel worse after supplementing with 5,000 per day for almost 3 months. Heard it can take 6 -  12 months to feel better unfortunately
Avatar universal
I am also having terrrible joint and muscle pain after starting 2000IU of vitamin D3 once or twice a day.  I eat healthy and am very active.  I started vitamin D as a "fill in the blanks" after reading all the internet hype that it won't take a lot to overdose.  Almost immediately my joints and muscles started to hurt, like really hurt, I was scared I needed knee replacement it was that bad.   I stopped the vitamin D and it's slowly gone away.  

If you want a more balanced opinion on vitamin D or any supplement, search for "Ray Sahelian", he's a doc that posts both sides.

And yes, my vitamin D3 included 80mg of K2 and I get plenty of calcium and magnesium.
Avatar universal
I was at 19ng/mL in September. I started D3 (don't take D2 is bad for you), magnesium and Vitamin K2. I hurt bad for the first 3 weeks. Then it got better. You have to take the magnesium with your DAILY D3. Magnesium deficiency can arise while taking D3 because they work together. You're bones hurt because the waters d calcium are being pushed back into them. Do not stop taking the D3 and magnesium. K2 distributes the calcium throughout the body and makes sure it's not deposited into your arteries.

Weekly/monthly doses of D3 are not that helpful. You need D3 daily. Higher doses in Winter then in summer.

If you are low in D3, 5,000iu is more of a maintenance dose. You can slowly raise your dose every few days to see how you feel. Work up to 10,000iu daily for 2-3months and get re-tested with the only blood test that can diagnose vitamin D deficiency is a 25-hydroxy-vitamin D (25 OH vitamin D). Unfortunately, some doctors are still ordering the wrong test, 1,25-dihydroxy-vitamin D.

People cannot access UVB rays from the sun to create D3 in their body during winter months if you are above 34 degrees from the equator, regardless of if the sun is shining.
Avatar universal
resume treatment even though I know iYes I have terrible pain and it definitely is from the D3 replacement. I was tested three of four weeks ago and my level was 8, so I'm extremely deficient in vitamin D. It's now my 3rd or 4th week or treatment and the bone pain just started this week. It may be the worst pain I've ever had. I read an article that said this happens because of  the remineralization of your bones which were demineralized by your vitamin D deficiency.
I sobbed today when going upstairs to take a shower, and when coming back down the stairs because my legs hurt so much. I had a total knee replacement in January 2016 and it didn't heal all the way because of the deficiency. So to the person who needs knee surgery, please t's painful and wait and see where your levels are and how your knee feels after you've been treated for 6 months or however long it takes. Here is the information from the article explaining the pain upon D replacement. I'm sorry I don't have the citation, i had copied and pasted it into my email for my own use:

"However, if you are experiencing pain while taking vitamin D, then your bone mineral status is definitely not normal and your pain proves it. You see, when your bones are seriously depleted of minerals, and you begin to take vitamin d, the vitamin d will help you start absorbing minerals and depositing them into the bones where it is needed. But water always attaches to minerals, and when your bones begin to remineralize, it will also draw water with those minerals.

Unfortunately for many, when this happens, the periosteum, a thin layer of tissue that surrounds the bones, will swell with the water, causing pain similar to the pain of a bone bruise. This pain is ‘temporary’, meaning that it can last weeks to months, sometimes even up to 6 months or longer, depending upon how long it takes for your bones to stop remineralizing at such a high rate."

I'm going to keep up treatment even though it's tPOTHYROID because I also read that your thyroid hormone cannot work at the cellular level unless you have sufficient D3 at the cellular level.  I cannot have hypothyroid for the rest of my life. Too much depends on vitamin d sufficiency.

I hope this information helps.erribly painful for me. I think the deficiency is what is CAUSING Me to be HY
1 Comments
sorry for the errors. I don't know how to edit.
Avatar universal
I also have been taking vitamin d 5000iu daily and also have experienced bone and body aches. I am thinking about not taking it because it pains me to walk. Its almost like im causing myself unnecessary pain by taking them. I dont know what else I should do. My doctor said I need to take them but the pain is too bothersome.
Avatar universal
After my vitamin d blood test i found that my level was very low (9.4) it should be between 30-100. now i m on treatment of vitamin D3 capusule 60000 iu once a week for 12 weeks with calcium tabs of 250mg, D iu100. within four days of this treatment , i have weird sharp pain in my fingers and toes. then it goes away within seconds and comes back anytime at any place on my body.
2 Comments
Same here.  Its weird.  Pain just comes in a second and then goes away after a couple minutes.  My muscle also feel like they are at the verge of cramping in my fingers, toes, and calves.  Its a symptom or side effect of taking D supplements I guess..
Same here.  Its weird.  Pain just comes in a second and then goes away after a couple minutes.  My muscle also feel like they are at the verge of cramping in my fingers, toes, and calves.  Its a symptom or side effect of taking D supplements I guess..
Avatar universal
I'm on my second week of 50000ui of vitamin D and the weird pains have begun.  Called my doctor and she says that the increase in pain is because my body is trying to repair what is likely years of damage from deficiency.  Guess we just need to be tolerant of the pain with the hope that our body is getting better.
1 Comments
Too much vitamin D can cause a problem too. See link.

https://www.vitamindcouncil.org/about-vitamin-d/am-i-getting-too-much-vitamin-d/

I think maybe short term it is okay and you will go down soon. But I take 4000 IU per day and have no problems. It is different for everyone. You should start slow really and build it up over time. such as 1000 or 2000 IU for about 3-6 months and re-test your blood if still low  
go up to 4000IU and retest in another 6 months. It should be around 50-60 when it is in the right range. Over that is too high . It is good to be about 60 for building good bones. Also, get about 1000 of calcium per day via diet and supplement combination. Not too much calcium. You can get kidney stones and so forth. The Vitamin D will change. You may have a good value for a year or two then it may drop so you can go up from say 2000IU to 4000IU and then once it stays stable stick to that amount. That is what our doctor did instead of a mass injection. But since you had it you will probably get you blood tested I hope in a few months.
mkh9
Avatar universal
Hi, I had levels of 23 so i have been taking 20,000 units  every 3 days. Im not sure of my levels yet but i feel much better.  however after the first month my entire body was in pain from the bones.

From my understanding my bones became weak and soft ( i didnt know they were as i didnt feel any major effects)  but i did notice i couldnt lift heavy things without hurting my wrists ( bones)  since taking  the high vitamin d3  i have had to take calcium and magnesium to up my levels of those as higher vitamin d3 would require more  of those to minerals.  so now i take  calcium, magnesium and  vitamin d3 - this lessens the pain in my bones, but i understand every so often as my bones are becoming strong again i will feel the odd pain , but this is good pain it means i am stronger after the period.

just take calcium and magnesium and you should be better.

final note,  the boundless energy i get from vitamin d3 became less effective until i got the other 2 in my system.
Avatar universal
Hi, I had levels of 23 so i have been taking 20,000 units  every 3 days. Im not sure of my levels yet but i feel much better.  however after the first month my entire body was in pain from the bones.

From my understanding my bones became weak and soft ( i didnt know they were as i didnt feel any major effects)  but i did notice i couldnt lift heavy things without hurting my wrists ( bones)  since taking  the high vitamin d3  i have had to take calcium and magnesium to up my levels of those as higher vitamin d3 would require more  of those to minerals.  so now i take  calcium, magnesium and  vitamin d3 - this lessens the pain in my bones, but i understand every so often as my bones are becoming strong again i will feel the odd pain , but this is good pain it means i am stronger after the period.

just take calcium and magnesium and you should be better.

final note,  the boundless energy i get from vitamin d3 became less effective until i got the other 2 in my system.
Avatar universal
The same happens to me when I take a high dose. Taking magnesium, calcium, zinc, b complex and vitamin K really help. I've been taking vitamin d supplements for years now and have noticed how my body reacts to it.

I've had sore muscles which ease after taking magnesium. Cracking joints which ease after taking calcium. My lips went dry and sore, b complex really helps. High supplementation will cause other vitamins and minerals to go out of balance. I suggest going on a break on vitamin d for a few days or until you feel better and focus on topping up the other important vitamins/ minerals and then you should be able to feel the benefits.

If taking high doses of vitamin d does not suit you, I suggest going for a lower dose with essentials combined. Osteoguard by Natures Best is very good.

This is from my own years of experience. I am not a doctor. Vitamin d deficiency has caused me a great deal of pain and depression, but after little help from my doctor I've had to do my own research.

I hope this helps!
1756321 tn?1499064984
I had issues with vitamin D worsening my existing magnesium deficiency. Pain is one of the many symptoms of low magnesium.

Excerpt from Know the Importance of Taking Enough Magnesium with Your Vitamin D...

"Vitamin D, just like all other nutrients, works in harmony with several other nutrients to perform its many functions. Most importantly, vitamin D requires and 'uses up' magnesium to convert from supplements or sun into its active form in the blood. As such, it is a big mistake to simply take large doses of Vitamin D without taking the need for magnesium into consideration.

Yet this is exactly what is happening in most cases and it is causing a lot of people to have problems that they believe are due to side effects of Vitamin D- or even worse they believe they are experiencing an overdose.

Such a huge number of people have subtle magnesium deficiency that some researchers and doctors are calling magnesium deficiency an epidemic, and anyone with even a mild or 'subclinical' magnesium deficiency will have this deficiency amplified when Vitamin D is taken.

This is creating some uncomfortable 'Side Effects of Vitamin D' that are actually symptoms of an induced magnesium deficiency!"
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