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Hair thinning and tinnitus?
Curious...I was just dx with low Vit D. Not sure how low yet, I'm getting my lab report mail to me. Wondering if anyone that is low D has had thinning hair and tinnitus? I have been tested twice for thyroid, do to many different symptoms but all tests are in so called "normal" range. So anyone out there have thinning hair and tinnitus with low D only?
I do have some sensitivity to sound but it's not really bad and comes and goes. The ringing is always there for me but it's low and I hear it when it is quiet around me. Only way I can describe my ringing is like the static of an old TV when the channel was lost but at a low pitch.
You having Lyme must be hard because of it looking a like thyroid symptoms too, you don't know what is causing what, from what I think I remember reading. lol My memory ***** and scares me at times.
Oh you have family with Hashi's, it can run in families, as you know. Hmmmm
I was suppose to go back in for a follow up on my tests, but doctor had to reschedule my appt., do to a family emergency. So I asked the nurse that called me what the doctor wanted me to do about the Vit D being low, she said she didn't know and would have to call me back. She called back and said that the doctor said I was not very low and to go buy either 800 IU or 2000 IU of D3. I picked the 2000 IU, thought that was the better choice, so I guess I will have to try it and see. Doctor sure doesn't seem concerned. I also had an x-ray done of my neck because I have a rice crispy sound every time I turn my head side to side plus I was/am having neck pain behind also. Nurse said doctor said x-ray was ok.
I don't think you said how low your Vit D was? Did or do your bones pop easier and more with low Vit. D? I know my Vit D isn't extremely low but makes me wonder about my bones doing what they are doing when they never had before.
I feel the same about being labeled as a hypochondriac, so no worries Carrie I understand. We just want to know what the heck is going on with us before it may get worst (which mine has) and stop it, and trying to give as much info for doctors to figure out. I do feel like they look at me like this when I give them a list of things but darn it I'm trying to help them figure it out too.
Drive careful. Hope all goes well.
You having Lyme must be hard because of it looking a like thyroid symptoms too, you don't know what is causing what, from what I think I remember reading. lol My memory ***** and scares me at times.
Oh you have family with Hashi's, it can run in families, as you know. Hmmmm
I was suppose to go back in for a follow up on my tests, but doctor had to reschedule my appt., do to a family emergency. So I asked the nurse that called me what the doctor wanted me to do about the Vit D being low, she said she didn't know and would have to call me back. She called back and said that the doctor said I was not very low and to go buy either 800 IU or 2000 IU of D3. I picked the 2000 IU, thought that was the better choice, so I guess I will have to try it and see. Doctor sure doesn't seem concerned. I also had an x-ray done of my neck because I have a rice crispy sound every time I turn my head side to side plus I was/am having neck pain behind also. Nurse said doctor said x-ray was ok.
I don't think you said how low your Vit D was? Did or do your bones pop easier and more with low Vit. D? I know my Vit D isn't extremely low but makes me wonder about my bones doing what they are doing when they never had before.
I feel the same about being labeled as a hypochondriac, so no worries Carrie I understand. We just want to know what the heck is going on with us before it may get worst (which mine has) and stop it, and trying to give as much info for doctors to figure out. I do feel like they look at me like this when I give them a list of things but darn it I'm trying to help them figure it out too.
Drive careful. Hope all goes well.
Ok... the average adult Human skin can generate about 10 000 IU of Vitamin D after about 15 mins in the summer sun between 10am and 3pm (majority of the skin has to be exposed to the sun in that case with NO UV block sun creams) and 20 000 IU after about 25 to 30 mins.
In the winter time, you'd need roughly double the exposure.
At any rate, your 'endo' doctor is probably reacting the way she does because she sticks to the provided RDA values (which are way too low).
2000 IU per day is 'meh'.
I'd stick to 5000 IU daily as your Neurologist at UCSF suggested... though, you can EASILY take 10 000 IU or even 20 000 IU (of Vitamin D3) per day.
Given that your levels are very low to begin with, I would say 10 000 IU of D3 daily would be the bare minimum for you to take... with 20 000 IU being 'optimal'.
In the winter time, you'd need roughly double the exposure.
At any rate, your 'endo' doctor is probably reacting the way she does because she sticks to the provided RDA values (which are way too low).
2000 IU per day is 'meh'.
I'd stick to 5000 IU daily as your Neurologist at UCSF suggested... though, you can EASILY take 10 000 IU or even 20 000 IU (of Vitamin D3) per day.
Given that your levels are very low to begin with, I would say 10 000 IU of D3 daily would be the bare minimum for you to take... with 20 000 IU being 'optimal'.
I found my post from a few weeks ago in the thyroid disorders forum and bumped it to the top. It has all my lab results in it. I get new results tomorrow....
Hi Tiredmama,
My hair seems pretty healthy however, I lost the outer third of my eyebrows years ago and I think that is a big symptom. I did post recently about my thyroid on that forum and one of the ladies posted back saying that she thinks I'm definitely hypo. I don't think the hair in my ears are damaged. I would think if that was the case, that I would have ringing ALL the time. I have it most of the time but I can go several days in quiet which I LOVE.
I get moments of extreme sound sensitivity too. Do you? I cannot stand to unload the dishes because of the clunking of the dishes against each other. This isn't all the time but just sometimes.
I have many other issues too including lyme disease. So...having said that, this could be related to that or the boat load of ABX that I'm on. It's all so very frustrating. I actually saw a new endo a few weeks ago and she ran some new tests and I have my follow-up with her tomorrow at 9am. I will be sure and post later tomorrow about the results of my appt. It will be later in the day though because I am heading out of town on a 5 hour drive right after my appointment.
My hair is really coarse and is on the dry side actually. I only wash it about 1-2 times per week but it's pretty thick except for at my temples where I have a receding hairline but that has been like that for years too.
My sister has full blown Hashi's so I know it runs in the family. I just want the ringing to stop.
You know, the whole Vit D thing is just crazy. My neurologist at UCSF wants me to take 5000IU a day and wants my level in the 70's or 80's. I have like 20 lesions on my brain and am being monitored for MS (I don't have it though but since they discovered all these lesions about three years ago they want to follow me for five years).
I probably sound like a hypochondriac I'm sure but I assure you I am not!
Anyhow, then the endo doc said NOOOOOO....that is too much Vit D....I want the levels in the 40's. She said that she wants to scream when she hears about people taking all this Vitamin D....I don't know what the heck to do or who to listen to!!!!! Anyway, so I'm taking 2000iu a day for now until I get my tests back.
On my thyroid, I feel like my numbers are at the low end too. Anyhow, I'll try to find my post on that and refresh it so it comes to the top and you can see it.
I'll be back on tomorrow!
My hair seems pretty healthy however, I lost the outer third of my eyebrows years ago and I think that is a big symptom. I did post recently about my thyroid on that forum and one of the ladies posted back saying that she thinks I'm definitely hypo. I don't think the hair in my ears are damaged. I would think if that was the case, that I would have ringing ALL the time. I have it most of the time but I can go several days in quiet which I LOVE.
I get moments of extreme sound sensitivity too. Do you? I cannot stand to unload the dishes because of the clunking of the dishes against each other. This isn't all the time but just sometimes.
I have many other issues too including lyme disease. So...having said that, this could be related to that or the boat load of ABX that I'm on. It's all so very frustrating. I actually saw a new endo a few weeks ago and she ran some new tests and I have my follow-up with her tomorrow at 9am. I will be sure and post later tomorrow about the results of my appt. It will be later in the day though because I am heading out of town on a 5 hour drive right after my appointment.
My hair is really coarse and is on the dry side actually. I only wash it about 1-2 times per week but it's pretty thick except for at my temples where I have a receding hairline but that has been like that for years too.
My sister has full blown Hashi's so I know it runs in the family. I just want the ringing to stop.
You know, the whole Vit D thing is just crazy. My neurologist at UCSF wants me to take 5000IU a day and wants my level in the 70's or 80's. I have like 20 lesions on my brain and am being monitored for MS (I don't have it though but since they discovered all these lesions about three years ago they want to follow me for five years).
I probably sound like a hypochondriac I'm sure but I assure you I am not!
Anyhow, then the endo doc said NOOOOOO....that is too much Vit D....I want the levels in the 40's. She said that she wants to scream when she hears about people taking all this Vitamin D....I don't know what the heck to do or who to listen to!!!!! Anyway, so I'm taking 2000iu a day for now until I get my tests back.
On my thyroid, I feel like my numbers are at the low end too. Anyhow, I'll try to find my post on that and refresh it so it comes to the top and you can see it.
I'll be back on tomorrow!
I hear you Carrie! I'm on doctor #3, I asked her about thyroid and she said no it's done with, not thyroid, tests are normal, she would not retest me. I had to ask about testing Vit. D, she said doubt it but I will do it. lol It came back low at 19 which she said is only a little low. The lab range was (30-100) seems to me that it is quite low at 19 from everything I have read, some people are even lower and really feel bad. I also know from my researching that hypothyroid (low thyroid) people seem to have low Vit. D and that is why I had asked about being tested, and some of the symptoms are like hypo. I too have what I call flare ups like you have. Hypo people do too and can swing from hyper (high thyroid) to hypo (low thyroid) in early stages of being hypo. I am also on they thyroid forum and lots of the people there have had problems with getting diagnosed and took years and many doctors to finally get help. You might want to join there, if you hadn't already, and list your lab results with ranges and someone will help. There are some wonderful ladies on there that know a lot and have had many problems. Question for you....is your hair dry, does the tips of your hair look like fish hooks? One of the thing about tinnitus I have read is we have little hairs in ours ears and if those become damage it may cause tinnitus. So maybe this is what is happening with us having tinnitus too, if our hair on our head is dry, fish hook like and thinning this might be causing the hairs inside our ears to be affected too. Please keep me posted on what you fine out about yourself and I will do the same. Lots of prays to you and take care.
Hi there....I wanted you to know that I'm in the same boat that you are in! I have been have tinnitus issues now for about 1.5 years. I've been to 2 ENT's, had my hearing tested (normal), Thyroid work-up (normal), vitamin D used to be really low (before I started taking supplements and BEFORE tinnitus). I think it's weird how now that I'm taking all this Vit D that now I have tinnitus on top of all the other symptoms. On again, off again fatigue, joint pain, etc.
I just really do not know what to do anymore. I even started a food journal a few days ago to try and figure out what is causing the ringing because I believe that it could also be due to a food allergy. It's weird because same days I don't have it at all and then others (like today), I wake up with it and it's with me all day long...
Frustrating!
I just really do not know what to do anymore. I even started a food journal a few days ago to try and figure out what is causing the ringing because I believe that it could also be due to a food allergy. It's weird because same days I don't have it at all and then others (like today), I wake up with it and it's with me all day long...
Frustrating!
I answered back to you in the group section "recovery after vitamin D deficiency" also. Thank you again for the replies back. Take Care
Hi Miked82,
Thank you so much for responding. I hope my hair problem is the Vit. D and will go away. Around the crown of my head is the most dry and the ends of my hair look like a fish hooks, and lost some hair at the temples which has never fully came back. I haven't done anything different over the years with styling so really never thought it was do to damage and besides I've always been careful, then I finally found out about Vit D being low so I wonder if this was the problem. I do also have problems with my nails. They split and break easy, thin, peel/dry looking at the tips a little and have vertical ridges in them. I also have brain fog, can't concentrate, forgetful, not sleeping well, no energy, low to no libido, achy neck in front, sore neck and shoulders, light headaches, a little nausea, lightheaded, 2 times I had vertigo, tinnitus (ear ringing), sore wrests and fingers, muscle spasms in arm, light depression, light anxiety etc, to name a few lol. Some of this stays and some come and go. Have good days and bad. But I do have to say I'm not as bad as some that I have read on here, at least I do have good days. I feel like, at times, it's all in my head when I have good days but then the bad days come around and I say nope something is wrong. And now I'm rambling on...is that a symptom too? lol I'm joking now, today is a good day so far. All I know is I'm tired of this and am looking for answers. Thanks again Miked82 for sharing. Hope you feel better soon. Oh and you might want to change your profile to say female. hehe Take care!
Hi Miked82,
Thank you so much for responding. I hope my hair problem is the Vit. D and will go away. Around the crown of my head is the most dry and the ends of my hair look like a fish hooks, and lost some hair at the temples which has never fully came back. I haven't done anything different over the years with styling so really never thought it was do to damage and besides I've always been careful, then I finally found out about Vit D being low so I wonder if this was the problem. I do also have problems with my nails. They split and break easy, thin, peel/dry looking at the tips a little and have vertical ridges in them. I also have brain fog, can't concentrate, forgetful, not sleeping well, no energy, low to no libido, achy neck in front, sore neck and shoulders, light headaches, a little nausea, lightheaded, 2 times I had vertigo, tinnitus (ear ringing), sore wrests and fingers, muscle spasms in arm, light depression, light anxiety etc, to name a few lol. Some of this stays and some come and go. Have good days and bad. But I do have to say I'm not as bad as some that I have read on here, at least I do have good days. I feel like, at times, it's all in my head when I have good days but then the bad days come around and I say nope something is wrong. And now I'm rambling on...is that a symptom too? lol I'm joking now, today is a good day so far. All I know is I'm tired of this and am looking for answers. Thanks again Miked82 for sharing. Hope you feel better soon. Oh and you might want to change your profile to say female. hehe Take care!
yes low vitamin D can cause dry and thinning hair. there is also a thread about the list of symptoms on this group and you will probably find ear ringing as one of them. VDD is bad and affects multiple parts of the body not only the bones. I am recovering from VDD and had the dry thinning hair, headache, depression, brain fog and weakness, blocked ears among the symptoms. I am now 3 months since I started supplementing and the depression, brain fog and weakness, blocked ears are 95% gone. still the hair and skin is not back to normal but I assume that takes longer time. as you will see most people mention that complete recovery can take 6-12 months. my starting level was 11 ng, after 2 months of 10K daily, it reached 45 ng and then I had to stop as I was getting an allergy when I take vitamin D. I just drink milk and walk in the sun. it took another month to get better. and I am still hoping for the rest of the symptoms to resolve in time.
FYI, it took me about 6 months ,or more, of going up on Synthroid to get my energy level back to normal and stop my nails from peeling as well. My weight gain took a few more months to drop even after I was in normal range. Hope you feel better soon.
Regards,
mkh9
Regards,
mkh9
Thank Mkh9 for answering. I'm not on any meds at all. Had all thyroid tests (twice) TSH, FT4, FT3, and antibodies all normal in range, but have lot of symptoms of hypo. TSH was once out of range but fell back into range on 2nd test the FT4 was in middle range and FT3 low in range both times tested. Calcium is normal on Basic Metabolic Panel. Just went back to doctor with more symptoms to add and asked for Ferritin, B-12 which were normal. Vit. D I was told was low, and I know this could cause some of the symptoms I'm having wasn't sure about the hair or the tinnitus though. Thanks for the answer. Will keep trying to figure out why I feel like crap. I still think it may be hypo though, but to get a doctor to think out of the "normal" range box is hard. Thanks again for the reply.
Actually, too much calcium from too much vitamin D can cause tinnitus and many other drugs can cause tinnitus and there is no real evidence for Vitamin D (low) causing hair loss or adding Vitamin D and gaining hair. However, hypothyroidism will cause hair loss and tinnitus. But you say your TSH is normal? So it may be due to some other drug you are taking or low iron or magnesium can cause hair loss. One in five people get tinnitus. So, it is hard to pinpoint the cause. Too high of calcium can cause it though and I your vitamin D is high it causes your calcium to go up. Stress can cause hair loss. A variety of things.
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