google this. I did and found a bunch of websites. Here is one:
I hope this helps!
I do have the same condition. In my medical record it is written as Mixed Connective Tissue Disease, but it's the same thing. I have 2 girls, ages 3 1/2 years, and 3 mos. The first came after 7 miscarriages, and the 2nd after several more miscarriages. My pregnancy with my 1st daughter wasn't too bad, but after, my problems got worse. with baby #2, the pregnancy was very hard. I felt awful the whole time. I had always thought I'd have a lot of children, but have decided that I can't be pregnant again. I had to stop all my medications, and in order to nurse, I can't take them either. This means about a 2 year break from medications that prevent the disease from damaging my body more. If her Dr. is smart, he'll treat her like a Lupus patient. The conditions are very similar, and so are the treatments. What are her worst problems? I may have some advice. I've done a lot of research in the past few years.