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Lichen Sclerosis

I found out I have Lichen Sclerosis. I never knew I had it, but I guess it was bad enough that I have almost no inner vaginal lips left ( I always just thought I had smaller ones!) and the opening to my vagina is very tight and sometimes splits during intercourse with my husband and hurts..I thought that was from my episotimy (sp?) after my children reopening!

The big question I have is this: I read that scar tissue can build up on the clitoris, I assume I must have this happen to me. This must affect your sexuality no? I notice that I have a lot less sex drive thanI used to, and when I make love to my husband it takes a lot longer to orgasm, and I am wondering ifd it is because if my clitoris is scarred that it is not as sensitive and could be partial cause of this? I hate to have to tell my husband at times that no matter what he is fdoing its nice but not 'enough' to help me...we never had this issue before marriage and he is feeling hurt and that I do not find him attractive any more or I would be able to have easier orgasms like I did 7 years ago...I feel terrible about this.

If this is the case, is there any way to have the scar tissue removed? I am 37 years old and not really ready to give up a good sex life with my husband just yet, we have only been married 5 years!

dont no much lichen stuff other than its auto imune and I have had auto immune stuff in younger years..I had Graves disease which my doctor said miraculously disappeared after 3 or 4 years, I have had alopecia areats, which I attributed to stress, but obviously auto immune as well. Thnx in advance!
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Avatar universal
Unfortunately I found it difficult to find information on mild cases of lichen sclerosis. Yours is the first comment I've seen that I could relate to.
I don't have the severe itching and burning associated with the disease. Like you, I thought I just had smaller lips and a smaller opening.
I just thought the pain of intercourse was normal. My husband is very patient and talented (LOL) is able to bring me to climax with oral sex. I'm 54 and when I'm not feeling sexy I sometimes need to "prepare" myself and work up to it by reading or watching some erotica. Unfortunately all "porn" is made for men. I have to really search for the movie clips of guys who are giving oral sex and who know what they're doing....and look like they really enjoy it. Anyway...that usually gets me prepared and less apprehensive of the possible pain from my skin tearing. I also use lubricant and ask my husband to go easy at first.
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Avatar universal
check out yahoo groups vulvar disorders.  There is a lot of info and support there. I would also check around on the web for other support/information groups.  I'm kind of suprised the doc didnt' give you any information on trying to control it.  

peace
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