You might look for someone who has written a medical article on this topic that has been published in a medical journal (online search would help with this). Then send the person an email and ask what doctor they know who deals with this kind of question, or how to find out, or what kind of doctor it would be.
this outreach organization for people with chromosomal abnormalities (i.e. female with XY chromosomes) has alot of information and some lists of drs in different areas. I would seek an opinion outside of my OB/GYN.
I would recommend seeing a geneticist. They should be able to answer all of your questions.