cervical stenosis, cervix scarred shut

[kelly26pa]

has anyone been diagnosed with cervical stenosis?  I got it from having a cone biopsy 2 years ago.  I was on the depo shot so I wasn't getting any periods, but then i got severe abdominal pain and had to have surgery.  That's when they noticed my cervix was scarred shut.   It reclosed after the surgery 3 months ago.  I am seeing a new dr soon, but i am confused.  I haven't been able to evacuate menstrual fluid for the past two months.  Anyone have any info?

[km70]

Hello girls,
I want to ask if someone have the same problem and maybe give some advice. Due to electro conisation I don't have cervix, it is all gone. After two months in which I don't have periods It came up that my cervical canal is completely closed and they can't find the entrance. They tried dilatation guided with ultrasound under general anaesthetic but can't reach the uterus because of a fibrous tissue they met on the way. They didn't go further because of a risk of rupture.
Does anyone have the same problem with no cervical canal, how did you solve it? Thank you

[margie464]

Wow - are there any gynos reading this stuff?  I had a cone biopsy in 1999 and then all good until March 2011 where I had adenocarcinoma in situ which is essentially pre-cancerous cells in the glands of the cervix.  After 8 months of agonising monthly pain I knew I had cervical scarring (I had this back in 1999 and was resolved at the time) however the advice from 2 gynos was to have a hysterectomy given I had already had my children, and the cervical stenosis would make pap smears and detecting cell changes, very difficult.  It does seem that the hysterectomy was quite a radical thing to do but I guess it has resolved the monthly pain issues which many of you know too well.  It also appears that the inability for my monthly flow to completely flow out has caused endometriosis (I have never had period pain and had no trouble conceiving my 3 kids which I am apparently lucky about) and my ovaries are really unwell so now need to contemplate having them removed.  My Drs believe this back flow of menstrual blood has been going on for years but completely un-diagnosed and never mentioned or even suggested to me as a consequence of the cone biopsy procedures.  I can't believe how little is known about this stuff and how inconsistent it is globally by these 'specialist' Drs.  Best of luck to everyone.

[Stac98]

I have had a DNC (1997) after a miscarriage, a LEEP (1998) for displasia, and a surgical cone (2003). I was diagnosed with cervical stenosis with a capital S in 2008 and about a month ago I started having severe menstrual cramps and clotting. I have been on the depo shot since 2000 so I normally don't have a period except when I am under a significant amount of stress. After having an ultrasound done, my doctor told me the results was I had "fluid" in my cervix. He said it was probably blood since I had clotted and the stenosis was preventing it from escaping properly. He said since it had only been going on for a month, when I go back in Sept. for my annual we would see how I was then, unless the pain became unbearable. The only option he gave me was a hysterectomy leaving the ovaries behind. Is there anything else that will permanently fix this?

[mjsmudger]

Hi I had cone biopsy and loop excision done three years ago and my periods stopped.  I have been discharged from one gyny telling me they didn't know why I wasn't having periods as my hormones were fine and it didn't matter as I didn't want to get pregnant.  This is despite me telling them I was in agony every month.  I even came up with this diagnosis and was laughed at saying it is very unlikely.  3 years on and I end up at a&E in agony thinking I was miscarrying and I get referred to a new gyny.  Who does what no on else had done and looks with a hystroscopy and laproscopy and wonders will never cease I am completely healed shut.  The first doctor tried for 25 mins to dilate me, the second 15 mins and then the first doc tried again for 25 mins before abandoning the procedure.  my left ovary and tube are now knackered and I am awaiting a decision as to the next step. Last Friday I was again doubled over at the side of the bed.  I hope I can get sorted I am getting married and want a baby with my fiance.  Does anyone know if the nitinol stent is available in the uk?

[Ashley1118]

I'm in the same boat as some of you. I had Cryrosurgery done this September and my period in October was extremely painful and VERY clotty. Now it is January of 2012 and I have not got another period and had HORRID pains both months my period didn't come...and I'm on the pill so I knew something was wrong. Went back to the gyno and I have a completely stenotic cervix, which they claim is highly unusual for this procedure. Two drs tried to break the scar tissue and were not successful. It is weird because they had dialated me in the beginning of Oct. and said my os was open. I left with estrogen cream that is suppose to soften my cervix, and a prescription for cytotec which I need to take a day before I go back in and they attempt to dialate me. I just turned 25 last mth and this is so depressing. I had mild/moderate dysplasia and now I'am so scared I will not be able to have children or get endometriosis from this crap if it re-closes. My doctor is not compassionate at all. Has anyone had this resolve after surgery?

[canice791]

HI
I am in a similar situation, i have to have a d&c next month for stenosed cervix, but my main problem is rectal pain and pressure, i dont get uterine pain, just the rectal pain and its could happen throughout the whole month a break every now and then,. its starting to really bother now as i feel its radiating down my legs, has anyone else got the same symptoms. im very worried at this stage im only 32 and have had two letz and now this!!

[Lo124]

Hello, I feel the same feeling a lot of the time. I just had a D&C to remove polyps today and am having posterior pain and pressure in my rectum. I'm thinking the pain could be caused by the speculum being pressed back for so long. I have the same pain during the ultrasound when the wand was pressed back towards my rectum. A little worried about this. Did your pain eventually subside? They are thinking pain could be caused by endometriosis.