mystery pain in lower left abdomen

[nagg]

on december 4 of last year i was truck with a sudden pain in my lower left abdomen so badly i was rushed to the hospital from work.. since then ihave been through an internal and external ultrasound, 2 ct scans, a laparoscopy, a colonoscopy, a barium upper gi, an endoscopy, xray, multiple blood tests and urinalysis... all results including biopsies come back as normal yet the pain persists.. it orignally started in the lower left quadrant but after the laparoscopy in january it appeared to centralize just below my left ribs - hence the gi route... however now it is radiating back down to the ovary area.. upon seeing a new doctor he bagan pressing around and seemed to have located the source of the pain around my left ovary.. today i went in for another internal / external ultrasound and it appears my ovaries are fine... but they did discover that i have a septate uterus... my other symptoms that began around the same time as the pain is an increase in monthly blood flow, an increase in mentsral cramp severity, irregular spotting and massively sever migraines off schedule ( i always have one the week of ovulation on the right side and one on the left two days before i begin menstarting). these migraines are so severe i have ended up in the hospital three times in the last two weeks. the abdominal pain gets more severe during my ovulation and menstartion weeks as well... i am 30 years old and have never had children.. i have been on the same birth control pill since i was 13 due to extreme menstral cramps and heavy flow... it almost seems as if i am back to where i started then and even worse now with the migraines causing me to vomit... i am due to start lupron this next week but am curious if this pain could be due to the sptate uterus.. if not is there another part of the reproductive system that could cause this pain? no cycts or endometriosis was found in any of my tests... however my older sister did just get diagnosed with fibroids in her utereus and abnormal paps run in all four of us sisters... the cells on our cervix have the possibility of turning cancerous.. one sister has had one cycts removed non cancerous and another has had one removed that was - but was benign... i have been out of work since december with this pain and am in dire need of some answers... pnarcotics do not even touch the pain either... please offer me any suggestions that i may bring to the attention of my gyn or pcp... i am running out of options and the pain is persistent and worsening... and help will be greatly appreciated... thanks

[SanBB]

By the way, I was also referred to an Orthopod who told me that the pain coming from my leg and groin was due to arthritis as the disc joint space was beginning to wear away, but not enough to do anything about. He recommended physio (been there done that, didn't work). I don't think he understood how much pain I was in and that most of it was pre-menstrual.  My GP and other Docs don't think that it was arthritis and the Gynaecologist says it's musculoskeletal. He didn't even check to see if the fibroids (or smaller ones) were fibroids as often they are misdiagnosed and happen to be adenomyosis which is a thickening of the myometrium inside the uterus. I don't think it is musculoskeletal as previous to this, I never experienced any pain like this, just the pre-menstual symptoms from the coil.

Another amazing thing is that if I push my fingers into abdomen just above my pubic bone and push upwards to try and lift up my enlarged uterus then try to walk about, the pain disappears from everywhere! This makes me believe that it is my uterus pushing on something that the Gynae can't see, and points to adenomyosis perhaps warranting the removal of my uterus.
Good luck everyone and keep pushing for an answer. We know our bodies and know when something isn't right. Will post again after my appt!!
SanBB

[SanBB]

Omg. I have looked on a lot of forums and there are a lot of women going through the same pain and have the same symptoms as yourselves, including me. Mine is similar to you all. After having the mirena coil out as it gave me a lot of hormonal symptoms, I experienced almost straight away pain in my right groin which went down my leg, abdo and side. I've been admitted several times also and have had a LOT of scans and tests including laparoscopy. All negative except for enlarged uterus and fiboids. I also have a septate uterus but they still fitted the coil (at the time I didn't know it shouldn't have been fitted). That was 16 months ago and I have now been referred to Nottingham to another Gynae as my Gynae says it's not gynae. Eveything you all say about the pain is the same except I don't get headaches. I have been told by another Doc that this could be adenomyosis (google it) and I think he might be right. He suggests an MRI of pelvis to diagnose and a hysterectomy (just uterus) which will help. So role on my next appt and good luck to you all.
Check with your gynae if it could possibly be adenomyosis and ask for an MRI as there are thousands of women out there suffering like us and a lot who are now pain free.
Hope this helps.
SanBB

[crwoodbury]

I have had similar problems...mystery pain on left said that had me at the ER twice in one weekend.  Had a catscan to see if possible for Darvaticulitis...but was negative.  CT did show a  septate uterus.  each time after left side pain, i began menstrating within a few days of pain.  Have been getting headaches frequently since this started.  I also have had increased bleeding and cramping.  I have had 2 children ..high risk pregnancies, both after ectopic which resutled in loss of right tube.

Please let me know what if any info that you have received, please.

[Florence96]

I have suffered from focal migraines during ovulation for years, although they have been less frequent of late, I had to go to hospital in May due to dehydration and vommiting. I had a laparoscopy and hysteroscopy yesterday and was due to have mirena IUS fitted but my consultant said this was not possible due to a septate uterus. My symptoms for the last two years have been very heavy periods, clotting, severe period pain, and shooting pains around the left ovary throughout the month. I also suffer from pain during intercourse. Your symptoms sound very similar to mine. I am due to see my consultant again in six weeks, but I to feel I am running out of options as I react to oestrogen treatments