Let us know how the scan goes.
If you need more information or a list of doctors familiar with this condition, let me know. I have a lot of resources that I have found over the years that I trust compared to a lot of random incorrect info found all over the web.
Hi there, thank you for your reply. I have had a quick read of one of your links, which is somewhat helpful in an informative way. I have a neucal scan booked for tomorrow morning so i will find out more then. My doc didnt actually tell me the exact measurements just that he explained that on the scan it shows from head to bum.
Hi there! Sorry you are going through this. It is indeed a very stressful time but there is hope so please dont despair.
I went throught the same and now have a darling litttle boy - 11 weeks old and completely normal. His was a huge 8.4mm at 12 weeks. He now has loose skin on the back of his neck and as yours the fluid basically showed head to bum. There is no membrane or cystic activity in this region.
Do you know the size of the CH and whether or not it is septated? This detail make a huge difference.
I am not sure how far along you are but perhaps consider a CVS or amnio as this could help you in your decision making process. I ended up having both for different reasons. Please feel free to message me - I am as non judgemental as they come!!
CH, which is now called a Lymphatic Malformation(LM), is very treatable. The size of the LM, extending from the head to the bottom is quite large, if they measured that correctly. I would get a second opinion and get another scan to see exactly what is going on. There are many children with LMs who live normal lives, play sports, go to college, etc. It is not a disabling condition.