There are many people living with Lymphatic Malformations(LM), including myself. There is a facebook group for those with LMs or parents of those with LMs. You can search for it(lymphatic malformation awareness group) if you want to join. I've been through several surgeries(lost count) to remove my LM and have been treatment free for the last 2 years(woohoo). If you have any questions, feel free to ask.