Anyone in Los Angeles Area?

[PoeJu]

Hi everyone!

Diagnosed with IGM 8 months ago. Right breast. I just had my second flare up aside from the first which is when I was dx. I am a nurse practitioner and have done a lot of research and have been watching this forum for about 6 months. So grateful to have found it and not feel so alone.

I've been taking Zyflamed for 6 months and just started the clay with this recent episode. My episodes seem to be cycle related and mild except the two abscess. I also get a warm flush through my chest, breast pain and a kind of fleeting nerve sensation down my right arm when I'm pre-menstrual and trying to flare up.

Still having a hard time finding a doctor who understands how to treat or even how to monitor me. I live in Los Angeles and have seen 2 breast specialist and 1 infectious disease MD through UCLA. I was told my next stop is Rheumatology. I have not tested + for any other auto-immune or infectious diseases.

Anyone in my area? Doctor recommendations? I'm ready to try major changes to my diet. Feeling sad and frustrated. Thanks!

[katcat88]

Hi everyone. . I have completely recovered from GM 1yr ago after suffering for 1.5yrs.  Had done 1 Biopsy but it made it worst.  My advice is just stop all the treatmen n medication as it useless and waste money.  GM is cause by hormones. Biopsy will worsen the infection. After I stop all the medication for 1yr. . N it healed up naturally.  All I have to say it's take time.  Give yourself at least 1-2yrs time. Now I only left r the scars from GM. Anyone know what's the best way to get rid of the scars?  

[JoJo45]

Hi Poe:

Pink Lotus Treatment Centre I know has treated this disease with success, as I know one of our early members was treated there.

Best of luck

jo

[pregnantandfrustrated]

Hi! Trust me, it will get better. I'm in San Diego. After seeing a breast specialist/surgeon, Infectious Disease, Gyno, I finally learned that I had to see a rheumatologist. I literally looked online for a female rheumatologist that accepted my insurance, and at reviews. I found one who has seen it only twice before on older women with other autoimmune disorders like lupus. I'm currently taking hydroxychloriquine (Plaquenil) and am much better. My flare up lasted roughly 8 months. It started when I was pregnant. We don't know if the medication really works or if it was my hormones regulating after having the baby.
Because I couldn't be treated with meds (pregnancy), I began juicing, acupuncture, and followed and anti-inflammatory diet (fish oil, Omega 3 foods, no dairy, very little grains, no red meat, and lots of water). I did alot of research. :You can see my previous posts of books I read. I hope you start healing soon! This will get better :)

[PoeJu]

Again, thank you! My husband is from Oahu. I can only imagine how difficult it was for you to access care. Sounds like you were put on a path and have been guided to good health and positive attitude. Mahalo!

[kuulei04]

That's awesome, I'm glad I could help.  I think that thinking positive really helped me through it.  I tried to remember "The Secret" The law of attraction, and how we attract to ourselves  what we imagine and think. I would imagine my body healed and I would imagine a happy smiling Me, and I did that as often as I remembered.  Having supportive family helps too.  

Yes I am Hawaiian =) and I live on the Island of Hawai`i (big island), where's your husband from? Living on Big Island made it even harder for me having GM.  In the beginning before I was diagnosed I was flying back and forth to Oahu where all the specialized doctors are.  And you know, the only person I found who was familiar with GM was a radiologist who specialized in breast imaging at Queens Medical Center (Women's Center) and I believe he just came from Texas pretty recently.  He heard about my story from my sisters friend who had breast cancer and wanted to see me. I told him my story, and he suggested GM.. I was just floored.  Then he offered a biopsy to confirm.  Unfortunately he couldn't treat me for GM because he was a radiologist and he's also never treated GM before, but I was fine with that because I decided to heal naturally.

[PoeJu]

Thank you so much for positive and encouraging words. I really needed that. I also appreciate the herbal and diet advice. I'm definitely going to continue down the natural and positive thinking path.

Any chance you are from Hawaii? My husband is Hawaiian so the Kuulei jumped out at me :)

[kuulei04]

Don't be sad!! I learned that emotions and what you eat affects your body.  I understand the frustration.  I was ready to have a mastectomy to get rid if it.  At about 4 months in, I changed my diet, took no meds and by the time I was 5-6 months in with it, I stopped having pain, went back to work, focused on knowing I will heal and feeling normal.  It started to heal and by 9 months in the holes closed and redness started to minimize and shrink.  Here I am 14 months later and my breast is smaller but just as soft as the other one, and a little lumpy.

I don't know if a diet change works for everyone.  But I say have a positive outlook and think that it will work.  It's all about what you attract to yourself.  I did the paleo diet, took curcumin from my naturopath (turmeric), did acupuncture, took doTerra Frankincense oil orally once a day and rubbed it on the breast too.  I healed so quickly I couldn't believe it.  I thought it would lady a good year and a half.  It's worth a try, it doesn't hurt you to eat healthy.  Food is medicine too.  When our bodies get the right foods, clean of toxins, our bodies were made to heal itself. I hope this helps! And I hope you find your road to recovery, take care!