Granuloma Mastitis

[MilyJ]

My Dr.'s had told me that he doesn't know if GM would come back even after a Mastectomy. Is That true? Have you had Mastectomy because of GM?

[ruostentatious]

Hi - sorry I am horrible at checking on here…

I have posted my "story" a couple times, but I have had a DOUBLE partial mastectomy (one on each side) from GM. BOTH have been successful, somewhat. I originally got GM in my right breast, after years of begging, finally got that taken care of. My GM in my left breast showed up about a year or two after surgery on the right. I've never had a flare up since on the right side. I have had a couple smaller lumps on the left since having a partial mastectomy...

[CatLady61]

I am 53 years old and have just been diagnosed with GM in the left breast.  I continue in antibiotics, which I have been in for 2 months straight.  I had surgery a month ago to remove 3 abscesses, one of which had to be redone st the 2 week follow up.  The Dr told me that this could go on for months.  It is healing but the pain continues.  I don't know what to fo.  I still go every two days for dressing changes and I am always tired and nauseated.

[HelpmyBFF]

Was the antibiotic Cipro?

[MilyJ]

Thank you for you comment, I just came from my post Op appt. he removed the drain today. My Dr.is planning to do a complete mastectomy of my breast once he turn off the fire first so maybe in 3 months. I was just talking with my husband about just opt to have a double mastectomy even if I just have one breast with Cronic GM because I'm afraid to get the same disease later in my life in the other breast, Do you have the disease in both breast?
Thank you again and I'm going thru the same as you and I'm here to give my Dr.'s thoughts and my support to other woman likeme that are looking answers to this rare disease, God Bless you and I hope the best to you!

[SherpaTat]

I have met with several doctors and am going to get a double mastectomy this winter.  One surgeon told me that she has treated 5 women with IGM and 2 had mastectomy without Reoccurrence of IGM.  Another surgeon told me that she would remove 98% of my breast tissue, so she would consider it a 2% chance of reocccurrence.  The same surgeon told me that she could not find examples of reoccurrence after mastectomy in medical literature that she had reviewed.
I have been on methotrexate and prednisone for a couple of months now, but the abscesses continue to form, so am going to opt for the mastectomy now.

[MilyJ]

Hello my name is Mily
I'm a mother of 3 and with 29 years old. I had right breast inflammation since June 2010 Dr's treated me with antibiotics for about 5 month and it went away, then in november 2010 the inflammation came back stronger than ever they gave a really high doses of antibiotics I ended up with join inflammation I couldn't move my body for 3 weeks and I was hospitalized for 5 days in december 2010, They did biopsy, mammograms and ultrasound with negative results for cancer and that was when I was diagnostic with GM. They started treating me with high doses of Prednisone since december 2010 and with Methotrexate the lump got a little better but never went away I gain a lot of pounds and a lot of side effects because of the prednisone and I just can't handle the pain no more. I stopped taking prednisone in august because I feel that it wasn't really helping that much. My breast had always drain but I'm in the point that the skin opens and drain even from the sides of my breast causing more pain and wounds that ended most of the times infected and I went to ER one month ago they referred me to a surgeon immediately. I had a surgery Sep 20, 2011 to remove part of that hard tissue (or part of the GM) and one week ago my Dr. checked me and recommend a second surgery because the GM was growing up again so last thursday my Dr. decided to do partial mastectomy surgery, and here I am sitting at my computer looking for answers and to similar cases. It has been so hard and painful process and I'm just at the point after all I have been thru this year I don't mine to have a complete mastectomy, sometimes I think I waited so long, sometimes I think I didn't have the right Dr.'s all I know is that I want to feel good and enjoy life with or without my breast. My kids need me, they need a mom with energy and not a mom that is always taking medications or going to Dr.'s appt every week, I'm just desperate and depression is getting worst.