Aa
Healing
Hello all--
It's been a long time since I posted. My GM started when I was seven months pregnant, in July 2010. It's been a year and five months and (can't believe I am typing this) I appear to be healed. My story is all over the forum in other places so I won't repeat it here, but there was definitely a point when I assumed that this was my life now--GM always in the background, flaring up and flaming out over and over. It may come back yet. But it's been well over a month since I stopped taking Clarithromycin (sp?). As soon as I stopped taking it (and even a few days before), I was having tenderness in BOTH sides, not just my GM (left) breast. My first thought was definitely that it was starting again. But after a week or two of tenderness and shooting pains, it just stopped.
My breast is almost normal again. The scars will always be there, and there appears to be a build-up of scar tissue inside the breast in the spots that were hard-hit. But I don't care.
I feel like I lost almost a year of my life--a year with a newborn, three other children, and what felt like fifteen thousand appointments. It was easy to get bitter about that. But I also feel like I got off easy. Like I said before, it may come back yet. But thanks to God, this forum, the amazing Dr. Laya and the crazy awesome support of my friends and family (not to mention my husband), I'll know what to do the next time around.
With thanks and love,
Margaret Ann
It's been a long time since I posted. My GM started when I was seven months pregnant, in July 2010. It's been a year and five months and (can't believe I am typing this) I appear to be healed. My story is all over the forum in other places so I won't repeat it here, but there was definitely a point when I assumed that this was my life now--GM always in the background, flaring up and flaming out over and over. It may come back yet. But it's been well over a month since I stopped taking Clarithromycin (sp?). As soon as I stopped taking it (and even a few days before), I was having tenderness in BOTH sides, not just my GM (left) breast. My first thought was definitely that it was starting again. But after a week or two of tenderness and shooting pains, it just stopped.
My breast is almost normal again. The scars will always be there, and there appears to be a build-up of scar tissue inside the breast in the spots that were hard-hit. But I don't care.
I feel like I lost almost a year of my life--a year with a newborn, three other children, and what felt like fifteen thousand appointments. It was easy to get bitter about that. But I also feel like I got off easy. Like I said before, it may come back yet. But thanks to God, this forum, the amazing Dr. Laya and the crazy awesome support of my friends and family (not to mention my husband), I'll know what to do the next time around.
With thanks and love,
Margaret Ann
Thank you, Jo. You have played such a big role in helping me find help and hope during my worst GM time. Thank you again for being such a caring and helpful moderator and friend to this forum!
And I do think the Clarithromycin was helpful to me...I wish there was just one way to attack GM, but it seems to be different for different people, which is frustrating.
And I do think the Clarithromycin was helpful to me...I wish there was just one way to attack GM, but it seems to be different for different people, which is frustrating.
Dear MargaretAnn:
I am so happy to ready of your healing!
This is such wonderful news.
A good reminder that in some cases this disease seems to 'burns out'. I am so thankful to Dr. Laya and her very caring treatment of our members. I believe her well-thought out care has made the difference in many women's experience of this disease.
The Clarithromycin therapy seems to have worked well for you, or as a factor in your healing? I am so hopeful that you remain well. I think you will.
Thank you so much for sharing your story.
With love, Jo
I am so happy to ready of your healing!
This is such wonderful news.
A good reminder that in some cases this disease seems to 'burns out'. I am so thankful to Dr. Laya and her very caring treatment of our members. I believe her well-thought out care has made the difference in many women's experience of this disease.
The Clarithromycin therapy seems to have worked well for you, or as a factor in your healing? I am so hopeful that you remain well. I think you will.
Thank you so much for sharing your story.
With love, Jo
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