Welcome! I'm glad you found this group, it's so helpful to read other women's experiences, especially when doctors don't know how to treat this disease.
To answer your questions.. I never did a fine needle aspiration. I only had incision and drainages done. But every single time I had my abscesses drained I noticed it made it worse! Or if I saw my surgeon he would pinch the abscess to fell if it had fluid (jerk! That hurt so bad), within 1-2 days I had to get it drained. Trauma to the abscess or the breast makes it worse or creates more abscesses. After I realized that (through this forum) I let them open on their own. Eventually didn't get new abscesses.
I wasn't breast feeding. I did breastfeed my 2 kids, but when I got GM, it had been 3.5 years after I stopped breast feeding.
I'm not sure if I'm cured per say. All my abscesses have closed and healed, I have scars now. I had GMfor 9 months and I have been abscess free for 9 months. My GM breast is smaller. The lumps are gone. The breast does feel lumpy in some areas, but doctors say it's probably scar tissue. Plus, because it's smaller I think you feel more. I noticed on the forum many women saying they healed naturally or they just let it run it's course, so I decided to do the same. I saw a naturopath doctor, she changed my diet (Paleo diet), put me on turmeric (curcumin), I did acupuncture (there are specific points for breast abscesses), I used doterra oils (frankincense -topically and orally), and I had an overall positive attitude. Everyday I imagined myself happy and abscess free, I believe in the law if attraction. I think everything helped me heal!
Naturopath doctors, acupuncturists, Indian doctors... It seems like they understand better how body works. And ice learned that if you're body is in a healthy state, it can heal itself. It's a pretty amazing machine.
You should take the time to read through old posts, it's really helpful. I hope you are able to find healing!
Thanks so much for sharing your experience and what's worked to bring healing to you. So the 10oclok abscess burst open two nights ago while I slept. I woke up the following morning to what I thought was a really sweaty armpit, sorry TMI! Turned out it was the abscess. I'd read that it could happen, but had no idea it would happen to me since I wasn't in that much excruciating pain. I quickly googled what to do with a burst abscess and most medial forums recommend seeing a doctor or going to the ER right away, but I opted not to because over the course of this abscess journey I've noticed that going to the doctors only makes the abscess worse with them touching, poking and pressing on it. The opening is probably only the size of small button and I've been cleaning it like every 2 hours, putting a mixture of turmeric and vitamin E and then covering it with a breastfeeding pad. I really hope that it heals quickly and that I was able to get all the puss out and most importantly, that it doesn't come back! How long after your burst did it take for it to heal/close up? Did the bruise like color ever go away? Mine is the diameter of a golf ball and it's bruise like in color (purple and red). Thanks again for your input! I've been reading all the postings and they're are of so much help! Thank God that others can relate to me. Like you, I have faith in God that one day I'll be completely healed of this. All the best to you!
I agree, poking, draining, cutting them does make it worse! I had my first incision done, 1 week later a new abscess, 1 week later another abscess.
When my abscesses opened on their own, I would massage the area to get out as much of the fluid as I could (just like you did) and I also used breast pads daily to allow them to drain. I changed the pads 2-3 times a day depending how much fluid was coming out. My abscesses would take forever to close... 1 month, sometimes 2 months!! Even the tiniest opening would leak the smallest amount of fluid for long periods of time. I never wanted to rush into them closing because I wanted to be sure everything came out that needed to or I think It would just abscess again.
The purple area eventually fades and gets smaller and you're left with just scars. I downloaded an app on my phone that allowed me to keep photos in a password protected app and I took photos every week of my breast. When you look at it everyday you don't realize how it changes. Then I used a collage app to make side by side comparisons. This helped me stay positive, seeing the improvements. I also tried to add text to the photos to keep them dated. I had about 3-4 different areas where abscesses formed.
Also I got a biopsy at about 4 months in to confirm I had GM (My mom figured if out before my doctors did) and the biopsy site and 2 smaller holes next to it abscessed. Just more proof that trauma to the breast causes these abscesses.
Hope this helps!! Take care, talk to you again soon
Hi Kuulie, one more question. How do you know if the abscess is healing? As you know, my abscess ruptured las Saturday but since then the wound looks the same. It is no longer draining puss and it doesn't hurst unless the breast pad dries up on it and I pull it to clean it. It does sometimes leak a clear fluid but doesn't look like it has puss. And the breast pad does sometimes have a slight blood stain on it (TMI, sorry!) I'm just afraid that it's not healing correctly and it may get worse. I stopped using hydrogen peroxide because I've read that it delays the healing process and instead opted for saline water which I use every 3 hours or so. Thanks again for your comments.