Aa
Making some progress
Hi Everyone:
I am reading the updates with a heavy heart - a lot of continuing suffering amongst us, really not ok.
I have listed the site under some of the search engines and www.granulomatousmastitis.com is coming up in search results with google and others now. I need to develop the site more and am hoping to do so in the near future. Some small progress.
Unfortunately I had a bad mammogram for my GM breast and tomorrow I am having core biopsies for malignancy. Also having a lot of breast pain, of course I am concerned that the biopsies alone will cause GM...or that I do in fact have cancer now. Just constant stress with this, as most of you sorely know.
We need to get some more exposure and advancement in research and care. We all deserve it. I am starting to get really angry to read of all of our suffering and no one seems to be looking at the bigger picture.
To the new members, please don't be discouraged by what you read here. Progress is being made, albeit small, and even though the reality is painful, at least we are recording experience.
Wishing you all healing.
Jo
I am reading the updates with a heavy heart - a lot of continuing suffering amongst us, really not ok.
I have listed the site under some of the search engines and www.granulomatousmastitis.com is coming up in search results with google and others now. I need to develop the site more and am hoping to do so in the near future. Some small progress.
Unfortunately I had a bad mammogram for my GM breast and tomorrow I am having core biopsies for malignancy. Also having a lot of breast pain, of course I am concerned that the biopsies alone will cause GM...or that I do in fact have cancer now. Just constant stress with this, as most of you sorely know.
We need to get some more exposure and advancement in research and care. We all deserve it. I am starting to get really angry to read of all of our suffering and no one seems to be looking at the bigger picture.
To the new members, please don't be discouraged by what you read here. Progress is being made, albeit small, and even though the reality is painful, at least we are recording experience.
Wishing you all healing.
Jo
Wow, I'm so glad to have joined this group! It sure does help in knowing other woman are frustrated, discouraged, stressed, and being poked and prodded every time they turn around also!! IGM is very frustrating, I a look forward to being on this journey with many of you women.
Congrats Jo on the negative results, I've been there, I know how good that news feels : )
Congrats Jo on the negative results, I've been there, I know how good that news feels : )
So glad to hear you're okay. I can only imagine the relief. Also a relief that your IGM did not get worse. Keep up your good work on here, Jo, I know I haven't posted in months but I have lurked from time to time.
Miriam
Miriam
I just had my results come back yesterday and I am NEGATIVE for MALIGNANCY. I am so happy.
It was a really stressful 4-5 week process though. My most recent routine mammogram (for IGM follow-up) showed new calcifications in a worrisome pattern in my IGM breast. So they did a sterotactic biopsy with the mammogram machine, under compression, of a number of the calcifications. I then had to wait 12 days under stress, to find out I am negative - followup again in 6 months. Thankfully! AND I don't think I have provoked an episode of IGM, which was a major worry for me. What a relief.
The stress is the worst.
Jo
It was a really stressful 4-5 week process though. My most recent routine mammogram (for IGM follow-up) showed new calcifications in a worrisome pattern in my IGM breast. So they did a sterotactic biopsy with the mammogram machine, under compression, of a number of the calcifications. I then had to wait 12 days under stress, to find out I am negative - followup again in 6 months. Thankfully! AND I don't think I have provoked an episode of IGM, which was a major worry for me. What a relief.
The stress is the worst.
Jo
Jo,
Just saw this post after writing to you on the last one. I am so sorry to hear about this. How could we not have weird stuff show up on mammogram, after all the wounds from biopsies, scarring, abscesses, surgeries, etc.? What did your pathology results show? Was it a malignancy? Are you doing okay?
I am angry about all of this too, and discouraged.
Jennifer
Just saw this post after writing to you on the last one. I am so sorry to hear about this. How could we not have weird stuff show up on mammogram, after all the wounds from biopsies, scarring, abscesses, surgeries, etc.? What did your pathology results show? Was it a malignancy? Are you doing okay?
I am angry about all of this too, and discouraged.
Jennifer
You must join this user group in order to participate in this discussion.
You are reading content posted in the granulomatous mastitis Group
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.
Condoms are the most effective way to prevent HIV and STDs.
PrEP is used by people with high risk to prevent HIV infection.
