Sorry I forgot to mention that I also started using Homoepathic medicine for reducing the inflammation. I was hoping to wait untill it shows some effect before starting on the steroids. Am I making the right decision?? I'm so scared of steroids :( ..
Oh goodness. I started the steroids yesterday and don't have any idea what to expect. My dose seems to be low so maybe it will be okay...
@one_hot_mess -- hi... I'm so sorry dear I didn't want to scare anyone off the steroids .. I'm so sorry once again if my post has scared you :( .. Myself I'm so scared, confused, indecisive n etc.. You name the emotions and I have it :( .... Many doctors prescribe Steroids (i think thats the only remedy that works for GM) . I just didnt wanna regret later of not trying anything else before steroids. Eventually I think I'll have to opt for it too. But yes if the homoepathy helps me to reduce the inflammation in anyways I'll be keeping everyone updated.... Hope you feel better soon and happy recovery.
I too am not a fan of the idea of long term steroid use due to seeing my father on them my entire life. There are some newer studies out about using methotrexate but it too has its own list of side effects. I think there aren't a lot of options unfortunately and everyone's experiences though similiar there is no one size fits all treatment. I hope you find a treatment that works for you. I am still exploring options too I see a rheumatologost next weekto discuss them further. This group is extremely helpful and has been a blessing to me.
Oh girl, I so hear myself in your post. My GM was caught fairly early by comparison. With so little information out there it is difficult to have confidence. I find it much easier now that I have this group. Your body is in distress right now. It is frightening when the sores grow overnight. Your rupture sounded painful and messy. Unfortunately, I am coming to the conclusion that this is a malfunction of our autoimmune system. That means our body is not going to heal the way it has in the past. Now it is fighting against itself instead of helping itself. I decided to use the prednisone for my families sake. I have taken 4 days worth. I feel fabulous. I had no idea how crappy I was feeling. I think so many of the aches and pains that I thought normal are really not. My wound is finally healing after 2 months of weeping. So, if the only thing that happens on steroids is that my wounds heal from round one...I am thankful. I understand that this is likely a chronic condition. I understand that if the symptoms return we may have to try something different. I do feel better knowing I have sisters that have gone before me. I hope this is helpful. We are sick. We need help. If we can heal, we might be able to find a way to manage this without all the strong medications. Keep reading...I think there really is hope.
Thank you so much Red and Pandora for your support and kind words.. At the same time feeling sorry for each one of us going through all this. Each one of us here has a new battle to fight everyday.. Right now I think its just going to be trial n experimenting to see what works n what doesn't ... Meanwhile spoke to the earlier histopath who declared it as lymphocytic mastopathy and not GM and she wants me to resend the slides for a third opinion... So this way everday something new comes up and then new confusions, new emotions and new decisions (which I hate errrrrr).... To add on to this parents and friends around creating a panic (thinking "u've got a tumor n cancer n blah blah blah").. Worst thing is that you can't even zip thier mouths up. Getting difficult to explain these kind of species around without sounding rude.. I wonder how all of you handle these discussions or questionaires... However I do understand thier concern towards me but what I fail to explain it to them is that " guys I'm already struggling with new lumps, new pains, home management and everybody's suggestion of changing doctors" ....
Sorry for venting guys !!!! I think I'm sending the slides in for a third opinion..... Hoping someone somewhere finds a guaranteed cure to put an end for all of us suffering here.