Hi everyone. I had IGM in my right breast back in 2000. After multiple biopsy's, oral and IV steroids, open wide excision's, and every antibotic on the market I finally had a right simple mastectomy in 12/00. I was great for a month until I decided to do reconstruction with a saline implant. With in a short time, mass formations started again and back to steroids and antibotics. The implant was removed...the area improved. I was 30 y.o., stupidily wanted to be "whole" and attempted reconstruction again. Well this time I went with my own tummy tissue...and it clotted off and I was again with NOTHING (that was in 2004). Then about 3 months after that failure, the IGM was in my axilla (R. armpit area) and it was explained that there is breast tissue there, and so the process started over!!!!
OK now for the good news!!! This time I saw an outstanding rheumatogist in Chicago and he decided to treat, "Out of the box". He explained that my blood work, and my symptoms matched an auto-immune patient and so he would treat me like that. So IV Remaciad infusions become my life for about 8 months (oh and oral methotraxate also). Well I haven't had a problem since those ended....and was even able to complete a saline implant reconstruction in 2006. I'm doing amazingly well.
My heart is breaking for all you women still going thru this...I have horrible scars, but sooo happy to be done with that whole process. I'm really hoping more education is provided to surgeons, rheumatolgist, and GP's. During this process, I was asked by a infectious disease doctor if I was doing this to myself!!! OMG....really, are you that stupid?!?!?! Luckily my primary doc and surgeon were even more angry at him than I was....but it does give you a very lonely, sinking feeling.
Please everyone take care!!! I so wish this was around 10 years ago!!!!