Well, I got a phone call from my dr. office today. They tested me for TB- negative, the lab messed up the test for cat stratch fever and tested for pertussis so need to go give blood again to rule that out as cause of GM. (Interesting thing is that 2 of the levels of pertussis came back high and I have never had pertussis in my life, so now I need to figure that out.) And also, she wants me to get a second opinion from another breast surgeon to see if she is missing anything surgically, etc. I totally trust her and have agreed. But now I am curious as to what this new dr. might say.
So far all doctors invovled have said no surgery/mastecotomy until we try all the meds possible, but with still having "active breasts" it makes it so confusing. Anyway, guess I'll have to wait and see what this new doc recommends. It would be nice to have a fresh set of eyes on my boobs :), no pun intended :). I'll keep you all updated.