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How long does is take to feel better?
Hi everyone, I just found this Forum - thanks for creating it! I just found out my Vit D is very low. I have a mysteriously acquired a fracture in my foot and have been been feeling more and more fragile, anxious and very tired.
My Dr has advised 5000 units a day for a month. I am just wondering how long it takes to build back up Vit D levels?
thanks Robyn
My Dr has advised 5000 units a day for a month. I am just wondering how long it takes to build back up Vit D levels?
thanks Robyn
Hi, I'm 34 years old and I just tested at a level of 6. My doctor has me taking 10,000 iu a day. It really takes 6 months? :(
Hi there, this is very similar to my story, a false fibro' diagnosis annd then after deciding it didn't quite fit finally finding VDD. I was just wondering how you are feeling now? Did you complet a course of supplements? has your pain and other symtpoms improved? Thanks a lot.
Hi Sally, noticed you did not get a reply and wondered if you were still looking on this site? I have been diagnosed as vitamin D deficient and have many of the same issues as you. Just wondered if you have been on vitamin D treatment and if it has helped at all?
I just found this group and very much hoping is still active as just found out my vit d level was indeterminable but recorded as "urgent count below 10"
This was un April this year but was not seen until a pain specialist read through my notes this week! I am in uk.
I started with awful hip pain in June 2004, it was like someone had switched the pain on, and I have been in some form of pain ever since. To cut a very story short I was a healthy37 yr old with a young baby and 3 other children at the time on no meds and no probs medically. I am now 91/2 yrs down the line, still in terrible pain but have fentynal patches to help. I do not sleep when I want to, but any exertion causes me to crash. I am on loads of meds, all to cope with symptoms or problems caused by taking pain killers long term.
I feel I have been robbed of the whole of my youngest daughters life so far, she has multiple medical problems herself and life is hard with her let alone with my own daily problems. I am angry about lack of diagnosis. I do not know if vit d d is the cause underlying all my probs. I was told that I do have an underlying disease as all tests show this but no one was able to tell what it was. I have had to live feeling half dead slither not knowing but fearing the worst and so have my children.
My symptoms......
Hip pain, first one then both, since 2004. Given steroid injection which was worse for one week then better for three weeks before returning as before. Told it was arthritis and would have to learn to live with it.
Knee pain and knee s often gives way.since aprox 2008
Ankle and heel and foot pain. Esp burning sensation under sole.
Back pain, worsening.
Shoulder pain
Muscle tenderness, soreness, instant fatigue of muscle on use.
Muscle tightness, all muscles clench without my awareness
Tight jaw.
Tension headaches.
Diagnosed with fibromyalgia 2012 ??
Diagnosed hyperventilation syndrome 2010 ?? Shortness of breath, excess yawning, chest tight, treated as asthmatic.
Doctors told me it was arthritis from 2004-2011 when eventually saw specialist who said it wasn't.
Diagnosed hypothyroid 2011, thyroxine since daily.
Have not been able to climb stairs normally since 2010
Have familial hyper cholesterolaemia diagnosed 2012, on statins.
Have knobbly fingers which are stiff and often red and sore? Osteo arthritis.
Neck pain and stiffness, creaks on moving.
Reflux, indigestion and symptoms of stomach ulcer, blamed on long term painkillers, have since been on lansoprazole since 2008
Various gynae type issues.
On antidepressants, I think drr's thought I was just a moaner who was fed up and lonely at this point!
Thirsty all time, not diabetic.sine 2013
Weight gain over whole length of time, but cannot exercise due to pain and gynae issues. Very little weight loss achieved despite major effort and others agree I do not eat to look the size I am.( good diet, ok portions etc)
Sweaty episodes every night, some days, never ever had this issue before, this been since 2012
Numbness and tingling of arms hands ears, side of neck regularly.
Developed a life threatening allergy in 2011, huge all over hives and or sudden facial and oral swelling, no cause ever found despite stringent diaries etc. could be day or night when awake or asleep. Controlled with two high dose anti histamines daily, and carry epipen.
Skin irritation, small sores that are very painful and last for months each, seem to follow a cycle, ( aprox 6 -8 at one time across body, limbs)
General skin itchiness.
Water retention, new prob since 2013, furosemide daily.
Miscarriage.
Hearing loss sudden, since 2002, no aid will work as is a brain recognition issue apparently, told to learn to live with. Very difficult if multiple sounds, very tiring indeed.
Terrible teeth health despite really good efforts at correct hygiene etc. gum disease, crumbling teeth, abscesses etc.
Never ever feel well, always feel exhausted at best, very Ill at worst, sore throats very often. Swallow feels harder as if huge lump in throat.
Swollen glands in neck almost every day, tender, sore. Since 2013.
No energy at all, crash following exertion or simply just do not wake up when sleeping, have slept into 3rd day before this.
Three blank episodes all 2012-13. Look like stroke type symptoms, out of it, slurring, confusion, sleepy, and do not remember most of the incident after wards. Hospital put down to severe reaction to a viral illness. Gradual recovery over following week each time.
Confusion, lack of memory, can't find correct words, coming out with wrong words, stammering, loosing thread of topics during conversation, no ability to concentrate.
Acknowledge that I am mentally not able to drive safely on occasion. Feel unable to function.
Lost, feel detached, loose hours without recall.
Cannot follow tv films etc, general disinterest in all hobbies, previously very enthusiastic. Brain fog. Cannot follow conversations if lengthy.
Forget to wash, shower etc on occasion, forget to eat on occasion. Lack of appetite even when hungry???
Extreme lethargy, extreme effort required to keep awake sometimes yet sleepless at times despite feeling exhausted.
Days pass by in a haze.
Have had a sleep study( results tomorrow) and MRI of ears and pituitary thyroid etc( nad)
Wrists weak and sore, wear splints esp on right due to pain and swelling., worse when have to do public stairs( have to strain on arms to pull up banisters etc) or after back very bad ( again from lifting/ pulling self up)
Some urinary changes, sometimes not able to go fully. Cystitis at times.
Very sensitive to cold and heat, sometimes skin is so sensitive to touch, causes much irritation.
Jumpy legs, hand tremors and cramping of fingers toes much more frequent.
Knees grind, and crunch. Neck grinds.
Generally feel post-workout, muscle aches etc
I have a lot in common with those on here, I see my gp tomorrow to find out what will be prescribed for me but awaiting urgent endocrine referral.
I do not envisage a quick recovery from reading on here, but also very cross at slow diagnosis compared to others on here!
I am going to ask for magnesium and calcium as is suggested on forum as well as vit d3. I hope there is someone to chat to on here who has shared some of my feelings etc.
Sally
This was un April this year but was not seen until a pain specialist read through my notes this week! I am in uk.
I started with awful hip pain in June 2004, it was like someone had switched the pain on, and I have been in some form of pain ever since. To cut a very story short I was a healthy37 yr old with a young baby and 3 other children at the time on no meds and no probs medically. I am now 91/2 yrs down the line, still in terrible pain but have fentynal patches to help. I do not sleep when I want to, but any exertion causes me to crash. I am on loads of meds, all to cope with symptoms or problems caused by taking pain killers long term.
I feel I have been robbed of the whole of my youngest daughters life so far, she has multiple medical problems herself and life is hard with her let alone with my own daily problems. I am angry about lack of diagnosis. I do not know if vit d d is the cause underlying all my probs. I was told that I do have an underlying disease as all tests show this but no one was able to tell what it was. I have had to live feeling half dead slither not knowing but fearing the worst and so have my children.
My symptoms......
Hip pain, first one then both, since 2004. Given steroid injection which was worse for one week then better for three weeks before returning as before. Told it was arthritis and would have to learn to live with it.
Knee pain and knee s often gives way.since aprox 2008
Ankle and heel and foot pain. Esp burning sensation under sole.
Back pain, worsening.
Shoulder pain
Muscle tenderness, soreness, instant fatigue of muscle on use.
Muscle tightness, all muscles clench without my awareness
Tight jaw.
Tension headaches.
Diagnosed with fibromyalgia 2012 ??
Diagnosed hyperventilation syndrome 2010 ?? Shortness of breath, excess yawning, chest tight, treated as asthmatic.
Doctors told me it was arthritis from 2004-2011 when eventually saw specialist who said it wasn't.
Diagnosed hypothyroid 2011, thyroxine since daily.
Have not been able to climb stairs normally since 2010
Have familial hyper cholesterolaemia diagnosed 2012, on statins.
Have knobbly fingers which are stiff and often red and sore? Osteo arthritis.
Neck pain and stiffness, creaks on moving.
Reflux, indigestion and symptoms of stomach ulcer, blamed on long term painkillers, have since been on lansoprazole since 2008
Various gynae type issues.
On antidepressants, I think drr's thought I was just a moaner who was fed up and lonely at this point!
Thirsty all time, not diabetic.sine 2013
Weight gain over whole length of time, but cannot exercise due to pain and gynae issues. Very little weight loss achieved despite major effort and others agree I do not eat to look the size I am.( good diet, ok portions etc)
Sweaty episodes every night, some days, never ever had this issue before, this been since 2012
Numbness and tingling of arms hands ears, side of neck regularly.
Developed a life threatening allergy in 2011, huge all over hives and or sudden facial and oral swelling, no cause ever found despite stringent diaries etc. could be day or night when awake or asleep. Controlled with two high dose anti histamines daily, and carry epipen.
Skin irritation, small sores that are very painful and last for months each, seem to follow a cycle, ( aprox 6 -8 at one time across body, limbs)
General skin itchiness.
Water retention, new prob since 2013, furosemide daily.
Miscarriage.
Hearing loss sudden, since 2002, no aid will work as is a brain recognition issue apparently, told to learn to live with. Very difficult if multiple sounds, very tiring indeed.
Terrible teeth health despite really good efforts at correct hygiene etc. gum disease, crumbling teeth, abscesses etc.
Never ever feel well, always feel exhausted at best, very Ill at worst, sore throats very often. Swallow feels harder as if huge lump in throat.
Swollen glands in neck almost every day, tender, sore. Since 2013.
No energy at all, crash following exertion or simply just do not wake up when sleeping, have slept into 3rd day before this.
Three blank episodes all 2012-13. Look like stroke type symptoms, out of it, slurring, confusion, sleepy, and do not remember most of the incident after wards. Hospital put down to severe reaction to a viral illness. Gradual recovery over following week each time.
Confusion, lack of memory, can't find correct words, coming out with wrong words, stammering, loosing thread of topics during conversation, no ability to concentrate.
Acknowledge that I am mentally not able to drive safely on occasion. Feel unable to function.
Lost, feel detached, loose hours without recall.
Cannot follow tv films etc, general disinterest in all hobbies, previously very enthusiastic. Brain fog. Cannot follow conversations if lengthy.
Forget to wash, shower etc on occasion, forget to eat on occasion. Lack of appetite even when hungry???
Extreme lethargy, extreme effort required to keep awake sometimes yet sleepless at times despite feeling exhausted.
Days pass by in a haze.
Have had a sleep study( results tomorrow) and MRI of ears and pituitary thyroid etc( nad)
Wrists weak and sore, wear splints esp on right due to pain and swelling., worse when have to do public stairs( have to strain on arms to pull up banisters etc) or after back very bad ( again from lifting/ pulling self up)
Some urinary changes, sometimes not able to go fully. Cystitis at times.
Very sensitive to cold and heat, sometimes skin is so sensitive to touch, causes much irritation.
Jumpy legs, hand tremors and cramping of fingers toes much more frequent.
Knees grind, and crunch. Neck grinds.
Generally feel post-workout, muscle aches etc
I have a lot in common with those on here, I see my gp tomorrow to find out what will be prescribed for me but awaiting urgent endocrine referral.
I do not envisage a quick recovery from reading on here, but also very cross at slow diagnosis compared to others on here!
I am going to ask for magnesium and calcium as is suggested on forum as well as vit d3. I hope there is someone to chat to on here who has shared some of my feelings etc.
Sally
Hey guys thank god I found this website. I started suffering from insomnia like 3 months ago. I never had a problem with sleeping in my life I use to sleep for 9 hours at any time of the day. Now am lucky if I get 4 hours. After many test they found my vitamin d level was 14. The doctor said it could be that. I been taking 7000 iu a day is that enough. I still haven't been able to sleep and its been a month.
I have been recently diagnosed with fibromyalgia. i was loosing my mind as doctors were not helping me in terms of treatments or medication for the awful pain it causing me): but even more recently(mon sept. 23rd) found out i have low vitamin d. i have read that low vitamin causes a lot of the symptoms i attributed to the fibro.is it possible to have both? my vitamin c was ok, and the doc wants me to take 50,000 ml vitamin d per week.is that a large amount?
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