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recovery after vitamin D deficiency Community
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Avatar universal

It's not quite numbness

So glad I found this group! I was getting tired of maniacally scouring the Internet for information. A little bit of background, I lived a pretty high-stress life through college and grad school and loved it. I had no issues with productivity and enjoyed it. Then I suddenly hit a wall and got "sick" for two weeks. My head was cloudy, headaches constantly, nauseated, achey, but no fever. I went to an urgent care, and the good doctor chalked it up to anxiety. Entirely. I chose not to do medication and just kept on. Finished school (in a cloud), found a job, and found a doctor in my new city. I quickly irritated her asking for constant testing, trying to explain that there were too many physical symptoms for the problem to be solely anxiety.

Fast forward 6 months (2 years into the fog), I finally got her attention when I mentioned that I was having some strange numbness around my mouth on the left side and pulling on my left hand (not full-on claw hand, but close). She tested me for vitamins just to shake me and said that she'd refer me to a neuro, given that MS can present as numbness.

Throughout the whole ordeal, I've developed significant health anxiety. I tend to jump to the extremes to explain everything. So I didn't care for her mention of MS. Anyway, test came back with my D being down around 15 ng/mL. She put me on the standard megadose and didn't say anything else. I kind of brushed it off, thinking that a vitamin deficiency couldn't possible cause all of my problems. BUT, I did take the supplements, and a few weeks later I had a good day! Singular day, but it hadn't happened in a year. I had the realization that she may have actually found my problem.

I went back 12 weeks later for a retest (with protest from my doctor, saying that it was unnecessary), and my levels had jumped up to 58. I was having full good days, and over Christmas had an entire week of 80% my old self. I accepted that I was still going to have bad days. However, lately (1 month after normal reading) I've been having more bad than good again. I'm optimistic that it'll turn around again, but it's difficult not to be discouraged. I'm 24, and I can't wait to get back to feeling like I am.

What is worrying me now are these strange nerve issues:
* An "almost numbness" on the left-side of my face. Not entirely lacking of feeling and no lack of muscular control, but definitely tingly.
* Nerve pain down my left arm (sometimes tingly, sometimes shooting). This usually coincides with pain between my shoulder blades.
* Perceived weakness in my left leg. It's as strong as always, but just feels...odd.

I've dealt with them throughout the whole thing, but recently they've been a little more persistent. I'm terrified of something progressive outside of the deficiency. My eyes are fine, my balance is fine, no weakness, speech is fine,  just abnormal feelings. I've decided to give it another few months (I've seen that it could take 6 months at normal levels to feel "normal" again) before approaching the doctor for a neuro appointment. But I would love some reassurance that other people have experienced similar symptoms. Before the deficiency, I never had these problems. There have been a host of other symptoms, but I'm trying to compartmentalize.
1 Responses
Avatar universal
Only take D3 and take it daily. D2 is harmful.

Vitamin D2 causes the amyloid protein in your brain to clump together making it difficult to remove this build up of amyloid. This leads to loss of cognitive function and sets up the conditions for Alzheimer's disease progression. Vitamin D3 helps clear amyloid from the brain which aids in improving cognitive function. Keeping 25(OH)D3 levels at or above 50ng/ml [US] or 125nmol/l  [UK] is an important factor in reversing cognitive decline. And if that isn't bad enough we have also known for years that Vitamin D2 speeds up the rate at which your body disposes of Vitamin D so the more D2 you take the more you require. Vitamin D2 is also less effective than D3 so you need more D2 to get the same effect as D3  

D doesn't stay in the body so if you take it weekly your body will be on a roller coaster of ups and downs.

You need magnesium to balance the calcium that will be better utilized. It will also help with the anxiety.

Extra calcium is not good to take if you get enough in your diet. Too much calcium causes heart attacks and kidney stones.

Vitamin K2 (MK4) is needed to direct Calcium into bones and away from arteries/soft tissue. If you're on meds that conflict with K2, then you won't be able to take this.

Vitamin B2 and Boron might be helpful to work with the D.

Most people are also deficient in magnesium as well as D. Being low in B12 is not uncommon either.

It took at least 2 months to start to see improvements
I took 10,000iu of D3 daily to raise levels.

The first few weeks were torture with the bone pain.
Topical magnesium helped along with oral magnesium. Also Epsom salt baths/foot baths. I make Magnesium Oil and add it to lotion to apply. The 'oil' can sting the skin.

The only way to get D3 from the sun is through uvb rays. These aren't available all the time. It depends on where you live and the sun's position in the sky. The sun might be out, but it doesn't mean you'll make D3 in your body.

If you wear sunscreen you'll block uvb rays. If you shower too soon after being in the sun your body won't get the benefit of the D3 process.

Vitamin D needs to be at least 50ng/mL
& remain above this level in order for the body to heal and better fight off other illness.

Vitamin B12 must be at least 500, closer to 1,000. Tingling could be low B12. If left untreated it can cause nerve damage. If you've taken B12 supplements within 4 months of being tested, the result will be inaccurate and test higher than you actually are.

If have nerve issues due to B12, most likely will need B12 injections. Do no get Cyanocobalmin B12.
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