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1216899 tn?1288570325

Vitamin D deficiency symptoms

With all the sites out there that have info on Vitamin D, their just doesn't seem to be one that has all the symptoms that can accompany vitamin d deficiency. I'm going to list my symptoms, so that others may have some insight, in layman's terms. I hope anyone else with the deficiency would also post theirs.

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Avatar universal
if you do have absorption issues, did you get checked for celiac disease?  From what I have read it seems like D is one of the supplements that is sometimes hard to absorb if you have celiac.  A lot of people don't have the absorption issues once they are gluten free.  I also read it can cause hypoglycemia and a lot of the symptoms D causes also.  I may ask to get checked at my next visit, just to be sure.
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Avatar universal
I didn't actually think of the absorption issue ... although that makes a lot of sense. So many of the posts and different articles i've read refer to difficulties with absorption so yes, perhaps that's it.  I've been reading so much that i haven't really sorted it all through yet, but i do recall reading of links with haemachromatosis/ferritin and issues with absorption also ... although this doesn't appear to be effecting my ability, but i need to research a bit more on that.  And yes I am taking D3 - the doctor initially said 1 tablet of 1000iu, but after my 'crap' day,  I made an executive decision to up the dose to two tablets and that saw the symptoms basically disappear within a few days.  So, i will go back and talk to the doctor and see what she has to say.  I hope your issue isn't the malabsorption as you say ... it does seem to be a difficult one to solve. I recall when my youngest was little and very ill, he had to take so many different minerals and supplements as there was always one that decreased or increased his ability to absorb another - such a difficult thing to follow sometimes.  Thank you for your kind words and yes, i'm passing on the message.  
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Avatar universal
I don't think it is necessarily that your levels "weren't that low" but that you seem to be able to absorb the vitamin tablets more efficiently. How many IUs of D are you taking? Is it D3? I go to the doc tomorrow to find out if my deficiency is due to malabsorption. I hope not. But your story gives me hope anyway. I am glad you are doing so much better. It's important that we support each other and pass the word of our experiences on, so that others who are suffering can find it and get tested and hopefully get better. Thanks for sharing Meg!
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Avatar universal
I started feeling shaky and checking my blood sugar a couple days before I got my results from the Dr about the Vit D and actually called her because I was worried it was running so low all the time, always in the 60s unless just after a meal(Sometimes not even going up much after a meal) and sometimes dipping into the upper 50s.  She said to switch to 5 meals a day and to make sure I am eating every 3 hrs at least and to keep an eye on it.  I did not start the Vit D until a day or two later, so it can't be from that.  I ran out of test strips yesterday and have not been able to pick more up yet, so I am not sure if the change in eating has done much yet to keep it up.  It never gets super low, so I am not so worried, but I know it is suppose to be above 70 or 80(according to where you get the info from) or you are considered hypoglycemic.  I have a feeling I have probably had that for a long time, I have always got the finger trembling and irritability from not eating if I have had to go to long without eating.  I just never checked it regularly until one of my blood tests showed a low glucose level a few weeks back when I first went to the dr and had my first round of blood drawn.

I said lately, because I know it has been lately, but never checked before just recently, so this could have started years ago for all I know, it never goes to dangerous levels apparently, so I mainly just get shaky.  I have always drank tons of coffee for about the last 15 yrs so I always thought the shakiness was too much caffeine, but now I think maybe it was being slightly hypoglycemic the whole time.
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1156694 tn?1265210026
Are you testing your blood sugars?  I know when my blood sugars are really high or really low I find my symptoms from the VDD to be worse.  I have been on this roller coaster for a long time. Diagnosed in Jan 2009.  Had terrible time getting my numbers up.  If my next test for VDD is in the 40's or above, I will have had my numbers up for a good 9 months

I have been doing well for the last 4 months.  Blood sugars are now low normal.  Other symptoms for the most have vanished.  I still get off balance and some fatigue.  Pain comes and goes, but not as intense as it was. (I do have fibromyalgia, too.)
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Avatar universal
Les,
I feel like your list is my list. I too "just dealt with" the pain, fatigue, feeling like I couldn't stand for more than a minute at a time. Itchy scalp, (itchy skin in general for me but some nights my scalp itches so bad I scratch until it bleeds.) Night sweats, pins and needles. All of that.

Here is my question: Did the low blood sugar "lately" start with the vitamin D? Because suddenly I have a change in blood sugar feelings since starting the D. I always felt I had low blood sugar issues but this has a different quality to it. I hope to hear back from you and best of luck. I'm over here rooting for you.
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