CFS has got to be the worst thing to have because none of the drs can seem to diagnose it and treat it as a real disorder or disease! I've suffered with it for about 13 years and it is truly debilitating. The only thing that has given me my life back is a stimulent which I too obtain illegally because the dr treated me like I was asking her if it was ok to murder someone when I suggested trying an adhd medication! So much for going about it the legal way...
I have been taking Adderall for many years for my CFS. It is the only thing keeping me in the working world. I am prescribed 30mg extended release twice a day. I try to only take it once a day and only on days I need to accomplish something. The drawbacks to it are that it makes anxiety harder to control. I also worry what it is doing to my body long term. I have also been prescribed Provigil and Diet Pills in the past. They help but it seems they loose effectiveness over time.
My CFS started with my Hep C TX
It has slowly gotten worse over last 9 years
I was put on Ritalin for awhile which made me awake but still feeling physically drained
In desperation last year I tried an "unorthodox" method and had the same results as you. I did very minimal because I wanted to go to sleep that night
I had a very wonderful normal day. I know this is not a solution and talking to the doctors about it is problematic. The use of these on a constant basis creates an entire world of other bad things.
I am trying to find out why something like that can make me feel normal and what my body is doing / not doing to produce the same results, to get back to the way I used to feel.
Trying all sorts of vitamin supplements right now to see how that changes things. There are a lot of posts about legal things that have helped others
Best of luck ---- hope you get well
In the US they prescribe stimulants for a condition called "shift work disorder," which is when people who work rotating shifts have problems with fatigue because their body never gets used to a particular schedule. So, being that fatigue is a big problem with people who have CFS, it doesn't surprise me that the stimulants are helping you. It would be interesting to know whether any drug manufacturers have studied this.