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535822 tn?1443976780

meds?

May I ask what Meds are prescribed for CFS and anyone know of herbal remedies instead,?
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1530171 tn?1448129593
IGeneX Labs, in Palo Alto, CA is supposed to be the golden standard.
You can a ask for a complete Borrelia and Co-infections panel,.

Because of your question, I don't think you have an LLMD, (Lyme Literate
Medical Doctor) and based on this assumption, I would suggest strongly you start looking for one.
If you live in a Lyme unfriendly state, it is more difficult to find one-you may have to travel to another Lyme friendly state perhaps.

Please contact your area Lyme society/support group where you can get additional information.

There's also a Lyme's disease community here, with some well-seasoned members who can give you invaluable advice.

I hope this helps.
Niko

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Avatar universal
Hi, I'm another person who was bitten by mosquitoes and ended up with Lyme!  I wonder if you can help me?  I am looking for the right place to get tested for coinfections because I can't shake the pain and stiffness.  I have also been diagnosed with ebv chronic fatigue syndrome since I've been down with Lyme for the past 3 years.  What coinfections should I look for and what lab?  Thanks,
Helpful - 0
Avatar universal
Hi, I'm another person who was bitten by mosquitoes and ended up with Lyme!  I wonder if you can help me?  I am looking for the right place to get tested for coinfections because I can't shake the pain and stiffness.  I have also been diagnosed with ebv chronic fatigue syndrome since I've been down with Lyme for the past 3 years.  What coinfections should I look for and what lab?  Thanks,
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535822 tn?1443976780
nope on each occasion it was the regular  Doctor ...anyway y from what I have heard the treatment is massive anti biotics ..not certain I would want that now .yup been 'away ' but always found Med help the best for communication and answers
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1530171 tn?1448129593
Did you get a complete Borrelia & Co-infections panel done at IGeneX at Palo Alto, CA?
Do you have an LLMD?

Yes to both, increases your chances for  accurate results and their interpretation, to either rule out or dx Lyme's disease.
You probably know this after going through 3 tests!

If you're having multiple symptoms which are "all over the place"
look also into the possibility of undermethylation, should Lyme and co-infections be 100% ruled out ( how one achieves this is... another topic).

You've been away, right? I used to bump into you around the forum, a lot!

Cheers!
Niko
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535822 tn?1443976780
PS I always thought I had Lyme ...but have had 3 tests and all neg ..

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535822 tn?1443976780
thanks for your response..I will look at the link IWILLDOTHIS..I am uncertain if it is what I have or whether iit is one of the Virues we have had doing the rounds in CA but its gone on for a few weeks now ..and the symptoms are similar .The heavy metal toxicity intrigues me ..as I have been meaning to ask for a heavy metal toxicity test, I had some blood work done couple of months ago and it did tell me my Vit D is somewhat low .which surprised me as I am always out on my land in the sun ..
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1530171 tn?1448129593
And how did I miss one of the most important "offenders", is beyond me, lol.

Lucky # 13. Free radicals--> oxidation-->inflammation
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1530171 tn?1448129593
Hi margy.

Well, diseases at one time were much simpler and once we successfully addressed the one or two causative factors responsible, we returned to normal health.

In a much more complex environment today, we must approach most conditions from a much wider perspective, realizing that there are multiple factors within us and from outside of us, which are responsible for the development of any given disease process.

Most medicines and herbals for CFS are a mostly hit n miss, cookie- cutter one for all approach and never address all the critical factors.

Some fundamental things to look into:

1. Neurotransmitter imbalances.
2. Unregulated or under-regulated thyroid function, even if "standard" serum tests are negative.
3. Adrenal stress (adrenal fatigue or hypoadrenalism)
4. Heavy metal toxicity
5. Gluten/casein intolerance, even if allergy testing for these is negative.
6. Low stomach acid.
7. Underlying pathogenic infections such as Mycoplasma & its co-infections
Borrelia, Babesia, Bartonella, Ehrlichia, HHV6
8. Deficiencies in tissue Magnesium, B12 (specially Methylcobalamin)
D3 and other. Note: some of the US lab ranges are too low for these, as too many patients are experiencing significant issues within so-called normal ranges.
9. Excitotoxins.
10. Candida and/or mycotoxins
11. Gene mutations-specially MTHFR !
12. Metabolic typing.

Many of the answers, people with CFS are looking for, are within the aforementioned 12 items listed.

Let me know if you need any details on any of the above, which are not in any particular order btw

If you want some suggestions for relief, you may do a search here under
"IWILLDOTHIS", which will bring you to a thread I started a while back at the fibromyalgia community.

Hope this helps.

Best wishes.
Niko
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