If you're still checking for a response, I just want to let you know that this is the Interstitial Cystitis (IC) Community. IC is an inflammation in the lining of the bladder and doesn't deal with the kidneys.
MedHelp has a Kidney Disease and Disorders Community, which you can access via the following link:
http://www.medhelp.org/forums/Kidney-Disease--Disorders/show/229
To make it easier, you can just copy/past your post into that forum...
For what it's worth, I'd probably go back to my primary care physician and ask for a referral to a different urologist for a second opinion and be sure to take any previous test/imaging results with you, so they can see for themselves what your prior diagnosis was, rather than having to take your word for it, since, crazy as it is, many doctors don't like we, patients to tell them what we have...