I currently have a dx of transverse myelitis following a nasty sinus/bronchial infection last Feb. No bloodwork done during this illness. My sx were fatigue, spasticity, parasthesia, rt footdrop, leg pain. Sx bil but significantly worse on rt. All tests evoked (ssep, baep, vep), bloodwork, mri's (c, t, l sp,) and spinal tap were normal. Sx resolved mostly.
May, sudden onset tremors when arm supported, faint L'hermittes. Repeat c sp mri and an initial brain mri negative. 2 lesions on brain thought to be migraine event due to location.
During summer leg sx worsen in heat.
Late Aug/Sept, extreme worsening (much more severe than initially) of leg sx/footdrop, spasticity, severe electric shocks down legs when startled, freaky arm movements (pkd?) parasthesia in extremities and face. Felt like my feet were beanbags. Repeat c sp t sp mri negative a couple months later,however my ssep was abnormal in both legs. From talking to my neurologist I got the impression he thought I had a cervical lesion but due to timing of the mri or location/size of lesion it wasn't demonstrated on the films.
My question is: Where do I go from here? I'm assuming I should just keep a simple journal of my sx and if it is something more serious such as ms it will show in time. I have a followup appt with my dr next month. Would a repeat brain mri be recommended? I have a feeling the demyelination is in my c spine. Can a dx of ms be made with a negative mri? Since the repeat ssep was positive would Sept considered to be a separate event?
Thank you very much for your time.