I was diagnosed with CAEBV in Feb of this year. My doctor prescribed 2g 2x/day valtrex. When I took it I couldn't move. I went from needing a rest after each activity to taking 30 minutes to figure out to move my body to the bathroom. My doc said I could reduce the dosage so I started taking 1g in the day and 2 at night. I was still very limited but could function for one activity a day and could lay in bed and read books/play games with my kids. After about 5 weeks though I had lost loads of weight and was showing severe malabsorption signs despite everything I eat being full of nutrients. I had random fevers and severe chills, everything made me feel sick. My doc suggested I take a break from the valtrex for a few days and see how I felt. I felt like a new person who could function again. A week after I stopped I didn't feel as great but still so much better then I was on the meds. Its been a month and I can function mostly like a normal person but I still have ear pain, throat pain, swollen lymph nodes. My doc wants me to keep taking the valtrex. I have been trying to eat foods that don't feed ebv and have cut out dairy, sugar, wheat, and eggs. What I am wondering is, is this enough? I worry that not hitting it hard with valtrex now could make it harder to go into remission in the future. Thoughts?