Aa
Aa
A
A
A
Close
Avatar universal

13 mm calcified nodule. CT ordered. Seeking realistic lrognosis

43 yowf,smoker 28 yrs. I was diagnosed with RA and ALE at 23. Took plaquenil 6 months til affected vision. and last 20 yrs I manage with occasional steroids for flares and I exercise and I'm very active. I have raynauds and antiphospholipid syndrome and osteoarthritis for sure, but rheumatologist disagree over lupus and RA diagnosis. Sometimes Ana andRF is pos but not in 15 yrs so I don't risk  taking biologic. Also have autoimmune thrombophilia (mthfr+,pai-1+ )diagnosed in last pregnancy after recurrent miscarriage. My father died at age 51 from rare bronchogenic carcinoid. He had lupus, raynauds(had multiple digits amputated). I had a cough 3/2017and had a chest BY that showed minimal lingular right middle and hope we love scarring with mild bilateral dependent atelectasis. Now, yesterday after persistent SOB cxr reveals 13mm calcified nodule right middle-upper lobe. Exact location of previous abnormalities. I've been a critical care RN for going on 20 years and buried both parents from lung Ca. Dad with the rare carcinoid and mom with NSCLA. Both progressed RAPIDLY and was stage IVs at diagnosis. I have a 4 no thyroid complex nodule seen uS 6 months ago that my primary care Dr said not to worry about. Btw, it's on right side of thyroid and my T4 had been low for over 3 yrs. I've experienced 30#weight loss in last year. Shoot straight , I can handle it. In my mind, I want to have immediate thyroid ectomy and r lung lobe removed ASAP. I know I'm jumping the gun and haven't even had CT. But what I've seen, my fears are warranted. How do I convey the severity of being aggressive with surgical options, when I know logic will be imaging, pet scans, bone scans, etc.  I watched my parents spend their retirement funds at MD .Anderson's hoping for a miracle to be told it was too rare and they didn't know enough to treat it. I know those cancers have a high ;90%) 5 yr survival rate if diagnosed early,  but are often misdiagnosed due to sometimes presenting as a calcified nodule. Seeking professional advise...am I off base ?




2 Responses
Sort by: Helpful Oldest Newest
Avatar universal
There are no professionals on this site.  It's a site for just plain folks, not medical professionals.  There are people who might have gone through the same issues as you are going through who might have some advice, but if you're looking for professional advice, this isn't the place.  As you ended by saying seeking professional advice, I just thought I would let you know that.  What I would say is, being too aggressive can kill you, too.  Or make you sick the rest of your life.  So the best thing is, if you don't like what you are hearing from the docs you have, look for better docs.  But a good doc won't do something that isn't medically necessary that might harm you.  A bad doc will.  So be wary of that too.  Now I hope you get some response from someone who has had your type of problem.  Peace.
Helpful - 0
Avatar universal
Wish I could edit grammar.
#should've skipped the tablet
Helpful - 0
Have an Answer?

You are reading content posted in the Lung Cancer Community

Didn't find the answer you were looking for?
Ask a question
Popular Resources
Here are 15 ways to help prevent lung cancer.
Tricks to help you quit for good.
Diet and digestion have more to do with cancer prevention than you may realize
How your health improves once you quit.
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.