Burning tingling legs

[tomandkimberly]

I am a 50 year old female and for the last 15 years or so, both of my legs, from hip to ankle burn and tingle like someone is putting ice on my skin, and sometimes buzz or feel like they're vibrating, as if from an electric shock. I have these symptoms literally 24/7, every second of the day. The only relief I get is from standing or walking (but not sitting or laying down). I should mention that I had a similar case like this in my early twenties that lasted several years but then seemed to go away. I have seen 2 neurologists who can't tell me what's wrong and have basically ruled out many autoimmune or nerve disorders. I have had MRIs of my spine, neck, and brain, a CT scan, nerve conduction studies, doppler veinous ultrasound, and tons of bloodwork to look for mineral/vitamin deficiencies. Everything has come back fairly normal. On my own I have tried supplements, such as magnesium, iron, B-12, B-2, B-complex, potassium, and probably others, with no benefit. I've also tried an anti-inflammatory diet for 6 weeks (basically just fruit, vegetables, nuts, seeds, legumes, fish, and meat). Does anyone know what might be wrong with me or what other treatment I might try to get rid of this annoying, persistent pain? Thank you.

[Jls34]

I would recommend trying strict gluten free, I know it seems far fetched but this is what is ultimately helping me and I just want to spread the word about it. I was in chronic pain, had rashes, anxiety, lab/test abnormalities. I am seeing the most surprising results everyday, things are quickly getting better. I think the trick to gluten free is being very strict, cross contamination can easily happen and gluten is hidden in many items. A google search will help identify hidden gluten. Also, the longer inflammation is there, the longer it would take to fix it all. You might see some improvements but other parts might take longer because they’re deeper I guess. I think vitamin deficiency and food allergy is probably it, I am not a doctor though just my advice based on my experience.

[Jls34]

Also, sounds like dysautonomia but something must be triggering it.