Hi, I'm a 30 year old male. Starting 3 years ago, I began having a constant dull headache ALL the time. It debilitated me. At the same time, my ears were also feeling full and I would have blurred vision with unstable vertigo which occurs in the supine position only. I have those symptoms to this day, the headache is the worst of all. On MRI, a benign 3.5 x 2.5 cm supraorbital bone lesion was seen, it doesn't affect my vision and there was alot of question was this really causing my 24/7 headache. The ear specialist skull base surgeon is the one who diagnosed me with that bone lesion. Neurosurgery refused to operate citing questionable source of my symptoms, even though the skull base surgeon/ENT told me if I just can't go on I'd get it taken out.
So for 2 years I was confused and stumped.
Then, 6 months ago, I started having new symptoms of intense lightheaded spells, with weakness, and I've become severely fatigued lately with a constant hard to explain feeling of nauseating energy in my gut. When I have a lightheaded spell I also have a hollow feeling in my chest, and a sinking feeling in my gut with sudden loose bowels. I get sometimes to where my standing blood pressure is up to 50 points HIGHER when standing than when laying down. My BP is generally much higher than normal during these symptoms.
What do you think about my symtoms and condition, and what should I do to figure out the newest symptoms if they're related to the tumor or not? Does it sound liek the tumor is causing the 24/7 head pain? (my head pain is relieved by pressing in my skull and laying on the right side of my head often causes major pressure at the exact site of the tumor) I don't know what's going on with me anymore, and with these latest symptoms I'm so close to giving up..they want to tell me it's all anxiety, but everyone who knows me knows better. What type specialist does a tilt table test and do i need that?
Woo, I know this is alot, I'm grasping for straws..