I was born without a thryoid too

Question

I was born without a thyroid, and i have never meet anyone else like this, my mom told me that around the time i was born (november 29th 1989) There were 9 other people in the same hospital within 2 weeks born the same way...I have always wanted to meet someone else born without one as well...so we could talk about, like the daily "struggles" and things like that.
It interests me very much, because like I said I have never met anyone else.

My email address is ***@****
and my name is nicole..you can always email me, just put something relating to this in the subject box so i will know to open it :)

This discussion is related to i was born without a THYROID GLAND, WAS ANY ONE ELSE BORN without one?.

serayser · Answer

Are you ok?

What is difficulties about this

j_lee · Answer

Im 25 and was born w/o a thyroid...I also was born in england and I am also on levothyroxine...I have had a perfectly healthy normal life...unless i dont take my medication...I have 2 children aged 5 and 11mth who have been totally unaffected! xxx

Jade91 · Answer

hiya! im jade and guess wot!!! i was born without a thyroid too! but i take levothyroxine! im really dont no wot synthroid is! is it an american thang coz ive never heard of it in england! my email is t r e k k i e 9 1 @ h o t m a i l . c o . u k. we're more or less the same age so i wanna talk about how you cope with it and everything!!!

Becky_1987 · Answer

I had the same problem as your son. I'm 20 now, but at his age I couldn't talk for a long time, or walk, or get potty trained wasn't having much development at all. I was put in a program with mentally challenged and autistic kids (neither of which I am). However, I obviously have since grasped speech, and am now ahead of the curve. It doesn't have to dominate his life- I got into a very good college, and eventually everything worked out. It took a long time to potty train me though- until I was 5.

Becky_1987 · Answer

I am 20, and was born without a thyroid gland. Because we are unsure of my father's identity (I was also artificially inseminated) we aren't sure of my full genetics, but mom mom was recently diagnosed with papillary thyroid cancer. Maybe I'm unusual the, because my TSH is frequently high- for the last 6-9 months it has been at 22.54, about 5 times higher than it should be. It causes a lot of problems, sensitivity to cold, tremendous weight gain (30lb in just a few months). Lots of headaches and fatigue. Chest pain and frequent shortness of breath. It's good to find others born without one too, though.

ttatina · Answer

if this thyroid med is throwing you out of wack i could just imagine what my 17 month old son is going through.he takes .50 mcg a day ,he ust to take twice the med but he never slept so they lowered  his dose.did u have any delay in your speech and development when you were little,my son is really delayed in everything he dosent walk yet or even say mama or dada which is really worring me.

ttatina · Answer

before your baby leaves the hospital they take blood from their heel which comes back a about a week later

Lana82 · Answer

Who would've thought such a little gland could be such a hassle for so many people? I'm new to the forum so basics; I was born in 1982 w/o a thyroid gland. Nadder. Not a thing, and diagnosed at six weeks after a heal-***** test. From then, I have taken thyroid hormone (replacement?) tablets, platue-ing at 150mcg per day. 

But where my life is at the moment, I find it hard to regulate my sleep patterns and medication at the same time. As soon as I wake up, I take my meds but it then throws everything out of whack and I'm not able to get back into a rhythm. Does this affect others?

Alana

ttatina · Answer

t t a t i n a 2 0 0 7 @ h o t m a i l . c o m

ttatina · Answer

myspace/***@****

ttatina · Answer

did u take medication synthroid since birth?my son was either born without one or his glands are to small  i asked doctors well witch one is it and they tell me it dosent matter they treat them both the same way,i was wondering if u had problems sleeping at night,my son does not sleep and sometimes seems dazed im wondering if this is from the meds.

melisamorrison · Answer

i was also born without a thyroid. email me at o x k u s m i j n e z e l x o @ a o l . c o m. without the spaces of course. but anyhoo.. it be nice to talk to someone else who doesn't have one!

nicolew08 · Answer

well i live a pretty much normal life...its just im always tired and like i get weird numbness in my hands and feet...

also im really sensative to cold weather...

i get bad headaches....and like sore alot..but other then that i guess its okay...but if i forget to take my pills after a couple of days I get horrible mood swings too

AR-10 · Answer

Please talk about your experiences here.

Tell me you live a normal life, because that is what we all want to hear. I have thoughts and questions, and I think you could shed light on the subject.

whittie918 · Answer

Just curious, how does not find out that their child was born without a thyroid?

WessyJessy · Answer

Hey there, i was born without a thyroid gland too, i'm 18 also, Unfortunately i don't love in america, but i would love to talk about the struggles of being born without a thyroid gland.