deadmemory's MedHelp Blogs https://www.medhelp.org/user_journals/show/1832303 Medical communities and forums staffed by doctors from leading medical centers. Over 325 forums and communities providing medical information and medical help. en Pain is out of control. Don't know what else to do, but cry So my doctor made referrals for pain management, endocrinology, and neurology on the 8th. I was told deadmemory Fri, 29 Jun 2012 20:43:46 -0400 https://www.medhelp.org/user_journals/show/511538/Pain-is-out-of-control-Dont-know-what-else-to-do-but-cry https://www.medhelp.org/user_journals/show/511538/Pain-is-out-of-control-Dont-know-what-else-to-do-but-cry Pain I know that surgery was never meant to treat my Chiari Malformation.. And I do not regret ever having deadmemory Fri, 15 Jun 2012 15:50:57 -0400 https://www.medhelp.org/user_journals/show/506908/Pain https://www.medhelp.org/user_journals/show/506908/Pain New findings As I sit and try to type this, the pressure in my head is almost unbearable. If I write down what's g deadmemory Tue, 22 May 2012 15:17:39 -0400 https://www.medhelp.org/user_journals/show/427145/New-findings https://www.medhelp.org/user_journals/show/427145/New-findings What is going on with me? I was feeling much better until yesterday. My head and neck began hurting so bad my eyes were tearing deadmemory Wed, 09 May 2012 16:34:21 -0400 https://www.medhelp.org/user_journals/show/385927/What-is-going-on-with-me https://www.medhelp.org/user_journals/show/385927/What-is-going-on-with-me Random ramblings about nonsense and stuff Couldn't take a nap because it feels like someone is sitting inside my head next to my incision and i deadmemory Sun, 18 Mar 2012 18:34:23 -0400 https://www.medhelp.org/user_journals/show/347435/Random-ramblings-about-nonsense-and-stuff https://www.medhelp.org/user_journals/show/347435/Random-ramblings-about-nonsense-and-stuff operative report An incision was made from the inion down to the spinous process of C1. Subperiosteal dissection conti deadmemory Thu, 08 Mar 2012 20:09:57 -0500 https://www.medhelp.org/user_journals/show/345832/operative-report https://www.medhelp.org/user_journals/show/345832/operative-report when does the neglect end UGH| I went to the ER on the 21st due to HI fever, terrible HA and was sick and it literally felt like my deadmemory Tue, 28 Feb 2012 20:19:25 -0500 https://www.medhelp.org/user_journals/show/344117/when-does-the-neglect-end-UGH https://www.medhelp.org/user_journals/show/344117/when-does-the-neglect-end-UGH My Chiari surgery as I remember it Jake, Dan (Jake's dad) and I were Seattle bound at 2 a.m. I was stretched out in the backseat of the deadmemory Thu, 16 Feb 2012 19:21:10 -0500 https://www.medhelp.org/user_journals/show/341939/My-Chiari-surgery-as-I-remember-it https://www.medhelp.org/user_journals/show/341939/My-Chiari-surgery-as-I-remember-it What a bumpy ride, but well worth it. I think I am going to start documenting everything that goes on starting today until I have surgery a deadmemory Tue, 31 Jan 2012 21:51:12 -0500 https://www.medhelp.org/user_journals/show/339055/What-a-bumpy-ride-but-well-worth-it https://www.medhelp.org/user_journals/show/339055/What-a-bumpy-ride-but-well-worth-it Back from Seattle Hello to all of my friends!!! I am home from my anticipated visit with Dr. Ellenbogen. He was amazing deadmemory Tue, 24 Jan 2012 22:14:52 -0500 https://www.medhelp.org/user_journals/show/337758/Back-from-Seattle https://www.medhelp.org/user_journals/show/337758/Back-from-Seattle VENTING TIME AGAIN... OK. Yes, I know I complain a lot. I am just so good at it. lol. Anyways, before I start I want to say deadmemory Mon, 16 Jan 2012 13:17:22 -0500 https://www.medhelp.org/user_journals/show/336220/VENTING-TIME-AGAIN https://www.medhelp.org/user_journals/show/336220/VENTING-TIME-AGAIN So excited for January 23rd and 24th I can't believe that in about 9 days I will be seen by DR. ELLENBOGEN!!! The next day I will be seen deadmemory Sun, 15 Jan 2012 14:14:20 -0500 https://www.medhelp.org/user_journals/show/336047/So-excited-for-January-23rd-and-24th https://www.medhelp.org/user_journals/show/336047/So-excited-for-January-23rd-and-24th Confused I did a peripheral eye exam last week and my doctor called me today with the results. He sounded very deadmemory Mon, 19 Dec 2011 17:25:06 -0500 https://www.medhelp.org/user_journals/show/331447/Confused https://www.medhelp.org/user_journals/show/331447/Confused MELTDOWN TIME I feel like screaming! And I would if it didn't hurt! I am so tired of doctors! I am tired of having deadmemory Sat, 17 Dec 2011 00:09:49 -0500 https://www.medhelp.org/user_journals/show/331050/MELTDOWN-TIME https://www.medhelp.org/user_journals/show/331050/MELTDOWN-TIME UGH So as all of you know I am going to be Seattle bound to see Dr. Ellenbogen. Got a letter from my insu deadmemory Thu, 15 Dec 2011 17:34:50 -0500 https://www.medhelp.org/user_journals/show/330841/UGH https://www.medhelp.org/user_journals/show/330841/UGH Pre syrinx My neurologist called today and had a long conversation with me (shes such a doll) She said that it i deadmemory Mon, 12 Dec 2011 15:38:57 -0500 https://www.medhelp.org/user_journals/show/330278/Pre-syrinx https://www.medhelp.org/user_journals/show/330278/Pre-syrinx Being persistant really does pay off!!! After waiting for my neurosurgeon to call me with the results of my CINE MRI of the brain I got sick deadmemory Thu, 08 Dec 2011 17:40:34 -0500 https://www.medhelp.org/user_journals/show/329680/Being-persistant-really-does-pay-off https://www.medhelp.org/user_journals/show/329680/Being-persistant-really-does-pay-off new findings Just got a call from my neurologist who did a cortisol blood test. While the cortisol levels are slig deadmemory Mon, 21 Nov 2011 16:31:12 -0500 https://www.medhelp.org/user_journals/show/326715/new-findings https://www.medhelp.org/user_journals/show/326715/new-findings frustrated to tears Just received a letter from my insurance carrier saying that since I apparently didn't have the appoi deadmemory Sun, 20 Nov 2011 15:22:58 -0500 https://www.medhelp.org/user_journals/show/326490/frustrated-to-tears https://www.medhelp.org/user_journals/show/326490/frustrated-to-tears exhauseted Haven't been sleeping well at all lately. I cannot get comfortable at night regardless of how many pi deadmemory Sat, 12 Nov 2011 12:43:20 -0500 https://www.medhelp.org/user_journals/show/324880/exhauseted https://www.medhelp.org/user_journals/show/324880/exhauseted