https://www.medhelp.org/user_journals/show/333672 Medical communities and forums staffed by doctors from leading medical centers. Over 325 forums and communities providing medical information and medical help. en I went back to Stanford for a follow-up visit last week. The people with stents were required to go b shoshin Sun, 12 Dec 2010 17:31:55 -0500 https://www.medhelp.org/user_journals/show/252231/CCSVI-me-follow-up-12-12-10 https://www.medhelp.org/user_journals/show/252231/CCSVI-me-follow-up-12-12-10 Although this is not the future I had hoped for, recently everything seems to be worse. My post-CCSVI shoshin Sun, 10 Oct 2010 19:20:57 -0400 https://www.medhelp.org/user_journals/show/236953/CCSVI-me-10-10-10-update https://www.medhelp.org/user_journals/show/236953/CCSVI-me-10-10-10-update I had my last follow-up for the FTY720 (fingolimod/gilenya) trial in June (yes, I know I'm way behind shoshin Mon, 04 Oct 2010 22:30:49 -0400 https://www.medhelp.org/user_journals/show/235549/CCSVI-me-end-of-trial-update https://www.medhelp.org/user_journals/show/235549/CCSVI-me-end-of-trial-update Recently, I've been thinking about where I'm at and what my options are and mostly going in circles. shoshin Sun, 11 Jul 2010 13:37:35 -0400 https://www.medhelp.org/user_journals/show/211204/CCSVI-me-7-11-10-update https://www.medhelp.org/user_journals/show/211204/CCSVI-me-7-11-10-update I guess I have to continue to report mixed and ambiguous results. Several weeks ago I went on a we shoshin Sun, 06 Jun 2010 16:16:03 -0400 https://www.medhelp.org/user_journals/show/200503/CCSVI-me-6-6-10-update https://www.medhelp.org/user_journals/show/200503/CCSVI-me-6-6-10-update I have been taking compounded 4-aminopyridine (the active ingredient in the new sustained release ver shoshin Sun, 11 Apr 2010 14:34:09 -0400 https://www.medhelp.org/user_journals/show/180971/CCSVI-me-4-11-10-update https://www.medhelp.org/user_journals/show/180971/CCSVI-me-4-11-10-update Well, when I last posted I mentioned the return of the MS hug. That turned out to be the harbinger of shoshin Sat, 27 Feb 2010 15:28:22 -0500 https://www.medhelp.org/user_journals/show/165980/CCSVI-me-2-26-10-update https://www.medhelp.org/user_journals/show/165980/CCSVI-me-2-26-10-update Well, as Lulu recently pointed out to me, CCSVI has been in the news and it’s been a while since I’ve shoshin Tue, 09 Feb 2010 16:31:38 -0500 https://www.medhelp.org/user_journals/show/160876/CCSVI-me-2-9-10-update https://www.medhelp.org/user_journals/show/160876/CCSVI-me-2-9-10-update First off, I apologize to those who are following for such a long gap in updates. I have been super-b shoshin Mon, 11 Jan 2010 20:06:08 -0500 https://www.medhelp.org/user_journals/show/151735/CCSVI-me-update-1-11-10 https://www.medhelp.org/user_journals/show/151735/CCSVI-me-update-1-11-10 Two weeks post-ballooning, the short summary is that I am sustaining improvement in the areas that I shoshin Sat, 19 Dec 2009 13:15:09 -0500 https://www.medhelp.org/user_journals/show/145673/Update-12-19-09-CCSVI-me https://www.medhelp.org/user_journals/show/145673/Update-12-19-09-CCSVI-me For those who are interested, here is the detailed version of my trip to Stanford to find out if I ha shoshin Mon, 07 Dec 2009 15:06:04 -0500 https://www.medhelp.org/user_journals/show/142508/To-Stanford-and-Back-CCSVI-me https://www.medhelp.org/user_journals/show/142508/To-Stanford-and-Back-CCSVI-me **1-2/98** Brief period of bizarre sensory disturbance--numbness, buzzing, vibrating. Resolved comple shoshin Sat, 01 Nov 2008 13:11:10 -0400 https://www.medhelp.org/user_journals/show/38044/Pre-diagnosis https://www.medhelp.org/user_journals/show/38044/Pre-diagnosis