https://www.medhelp.org/user_journals/show/778690 Medical communities and forums staffed by doctors from leading medical centers. Over 325 forums and communities providing medical information and medical help. en I thought I would check in with everyone. The holidays are completely exhausting me! Cody is not do CHRISTYDRAKE Fri, 16 Dec 2011 10:52:59 -0500 https://www.medhelp.org/user_journals/show/330955/Holidays-are-exhausting https://www.medhelp.org/user_journals/show/330955/Holidays-are-exhausting We got back from the Mayo Friday night close to midnight. It was a good week, Cody was having a good CHRISTYDRAKE Sun, 09 Oct 2011 17:17:57 -0400 https://www.medhelp.org/user_journals/show/318852/Back-from-the-Mayo https://www.medhelp.org/user_journals/show/318852/Back-from-the-Mayo We are scheduled for physical therapy at the Mayo Clinic! It will be after our week of doctors appts CHRISTYDRAKE Fri, 05 Aug 2011 11:03:57 -0400 https://www.medhelp.org/user_journals/show/306184/PT-at-the-Mayo https://www.medhelp.org/user_journals/show/306184/PT-at-the-Mayo Well things have not gotten any better, probably worse. Besides the usual debilitating nausea, now h CHRISTYDRAKE Fri, 29 Jul 2011 11:06:45 -0400 https://www.medhelp.org/user_journals/show/304900/Mayo-Appt https://www.medhelp.org/user_journals/show/304900/Mayo-Appt Cody has been having charlie horses in his calves quite a lot the last couple of weeks. He had one t CHRISTYDRAKE Wed, 29 Jun 2011 19:01:31 -0400 https://www.medhelp.org/user_journals/show/299302/Charlie-Horses https://www.medhelp.org/user_journals/show/299302/Charlie-Horses Vacation was wonderful and greatly needed! Relaxing on the balcony watching the waves roll in was ju CHRISTYDRAKE Fri, 17 Jun 2011 22:48:26 -0400 https://www.medhelp.org/user_journals/show/296920/VacationTrip-to-Urgent-Care https://www.medhelp.org/user_journals/show/296920/VacationTrip-to-Urgent-Care I had another meeting at the school today, finishing up Cody's IEP. The IEP actually kicks in starti CHRISTYDRAKE Wed, 18 May 2011 11:05:41 -0400 https://www.medhelp.org/user_journals/show/290690/Finishing-up-IEP https://www.medhelp.org/user_journals/show/290690/Finishing-up-IEP A tornado hit our neighborhood Friday night- a huge one! While we have some tornado damage, some of CHRISTYDRAKE Mon, 25 Apr 2011 08:03:42 -0400 https://www.medhelp.org/user_journals/show/285372/We-survived-the-TORNADO https://www.medhelp.org/user_journals/show/285372/We-survived-the-TORNADO Cody started his full dose of Cymbalta (120mg) plus Abilify on Monday and all 3 days since have been CHRISTYDRAKE Wed, 13 Apr 2011 16:07:51 -0400 https://www.medhelp.org/user_journals/show/282876/Good-days https://www.medhelp.org/user_journals/show/282876/Good-days Cody saw the neurologist yesterday, and he hasn't given up just yet. We are adding supplements back CHRISTYDRAKE Wed, 06 Apr 2011 20:36:11 -0400 https://www.medhelp.org/user_journals/show/281304/Neuro-Appt https://www.medhelp.org/user_journals/show/281304/Neuro-Appt Cody's blood test came back fine for the serum tryptese(sp?). No mastocytosis....I guess that is a g CHRISTYDRAKE Thu, 31 Mar 2011 15:27:54 -0400 https://www.medhelp.org/user_journals/show/279830/Blood-Test-Results https://www.medhelp.org/user_journals/show/279830/Blood-Test-Results I got back the results from Cody's gastric emptying test. It was fine, so now he doesn't have gastr CHRISTYDRAKE Fri, 25 Mar 2011 08:56:10 -0400 https://www.medhelp.org/user_journals/show/278223/Gastric-Emptying-Test https://www.medhelp.org/user_journals/show/278223/Gastric-Emptying-Test So the new gastro finally called me back. He wants to rerun the gastric emptying study since it has CHRISTYDRAKE Wed, 16 Mar 2011 17:39:56 -0400 https://www.medhelp.org/user_journals/show/276074/Update-from-Doctors https://www.medhelp.org/user_journals/show/276074/Update-from-Doctors I had a meeting yesterday with Cody's counselor and someone from the special school district. Let me CHRISTYDRAKE Fri, 11 Mar 2011 10:24:49 -0500 https://www.medhelp.org/user_journals/show/274766/Meeting-at-school https://www.medhelp.org/user_journals/show/274766/Meeting-at-school Well, we are starting the second week of the Migranal(DHE). Not so much help. He has not been able CHRISTYDRAKE Fri, 04 Mar 2011 08:42:08 -0500 https://www.medhelp.org/user_journals/show/273046/Checking-In https://www.medhelp.org/user_journals/show/273046/Checking-In I can't believe my little boy is 16! (not so little anymore). He had a decent day today. I didn't CHRISTYDRAKE Fri, 18 Feb 2011 21:58:02 -0500 https://www.medhelp.org/user_journals/show/269539/My-baby-is-16 https://www.medhelp.org/user_journals/show/269539/My-baby-is-16 We saw the new GI doctor today. I'm not sure this is the guy for us. He was perfectly nice and eve CHRISTYDRAKE Thu, 10 Feb 2011 21:36:51 -0500 https://www.medhelp.org/user_journals/show/267597/New-GI-Dr-Not-so-sure-on https://www.medhelp.org/user_journals/show/267597/New-GI-Dr-Not-so-sure-on Cody was discharged this morning at 10:30. He got his last dose of IV-DHE at 9:15. His nausea is wa CHRISTYDRAKE Mon, 07 Feb 2011 15:35:29 -0500 https://www.medhelp.org/user_journals/show/266665/Home-from-the-Hospital-IV-DHE https://www.medhelp.org/user_journals/show/266665/Home-from-the-Hospital-IV-DHE I spoke to the neurologist this evening about the midodrine not doing much for Cody. He asked if Cod CHRISTYDRAKE Thu, 03 Feb 2011 20:59:27 -0500 https://www.medhelp.org/user_journals/show/265784/IV-DHE-Scheduled-for-tomorrowmaybe https://www.medhelp.org/user_journals/show/265784/IV-DHE-Scheduled-for-tomorrowmaybe Since Cody started the midodrine, he has not had any change. We upped his dose on Saturday to 20 mg. CHRISTYDRAKE Sun, 23 Jan 2011 20:46:00 -0500 https://www.medhelp.org/user_journals/show/262675/No-Change-Not-doing-to-well https://www.medhelp.org/user_journals/show/262675/No-Change-Not-doing-to-well