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Gilenya: low lymphocyte count
- Multiple Sclerosis Community
Has anyone else on gilenya been told that your lymphocyte count is too low? I got a call from my NP today telling me that my lymphocytes are not cooperating and they've dropped too low. I was at 196 last month and was at 164 from the test taken on tuesday...


Gilenya
- Multiple Sclerosis Community
I have been living with ms for 15 years. Started out on Avonex for 12 of those years. Had an attack a couple of years ago and my neurologist wanted me to start taking Betaseron. Have had a decent run with Betaseron except for low white blood counts. Th...


Update...
- Multiple Sclerosis Community
Sorry I am not around much anymore...life is happening, with taking care of my mom, taking care of myself and everyone else I just don't have time to get on here as much as I would like. Everything is in the works with the Gilenya. Got all my workups d...


GILENYA (fingolimod)
- Multiple Sclerosis Community
My new Neurologist wants to put me on this med. I don't no much about it i was on Avonex before but it made me really sick and by the time i felt better it was time to take another shot i have kinda a needle phobia anyway i haven't been taking anythig for ...


Low T cells
- Multiple Sclerosis Community
I was sent to an immunologist due to low immune response. He found my T cells were 22 (normal 1000-3000). I called my neurologist and he said its OK to stay on gilenya, but I'm scared to leave the house for fear of picking up some illness. Has anyone el...


Gilenya Users: Past and Present
- Multiple Sclerosis Community
I've started posts in the past for our DMD users so we can easily use the search feature and bump them up and add on through the years. Please add your name here: name: dx: Gilenya (date)


Gilenya tidbits
- Multiple Sclerosis Community
For those of you contemplating the new oral med Gilenya (FTY720), here are a few interesting articles. The NMSS's Momentum mag has a nice overview of the development of FTY720, how it's thought to work, and some of the potential drawbacks. "Fingolimo...


Taking the oral plunge tomorrow and scared
- Multiple Sclerosis Community
The copaxone is not helping the amount of lesions in my brain. My neuro wants to try the new oral that has come out by Gilenya. My insurance plan does not cover Avonex or the other betaseron's. I don't mind since they make you feel horrible anyway. I'm tak...


Gilenya - Patient dies after first dose
- Multiple Sclerosis Community
I didn't know what else to put in this title other than what I know - you can read about the details at a couple different sources: http://www.businessweek.com/news/2011-12-13/novartis-confirms-patient-died-after-starting-gilenya.html http://www.cnbc...


my rebound experience awaits me...
- Multiple Sclerosis Community
Anyone gone on the drug holiday? Am now going into my 2 months of holiday and am a bit nervous over it. Neuro told me 70% chance of new flares/lesions and can't say that makes me happy. He wants me on Gilynea? but think cardiologist will veto that, and ...


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