Ehlers Danlos Syndrome

Information, Symptoms, Treatments and Resources

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Posts on Ehlers Danlos Syndrome (36480)
New poster, bad Chiari symptoms and how to deal? - Chiari Malformation Community
- Jan 02, 2016
So back in late August I saw a geneticist, one of the best in the world, and she diagnosed ...
Help with Nausea!! - Chiari Malformation Community
- Oct 16, 2014
I have Chiari Malformation and was told I have EDS as well, I'm in the process of getting a...
accommidations @ school? - Ehlers-Danlos Syndrome Community
- Aug 25, 2011
what types of accommedations have any of you with EDS, hypermobility type found most helpfu...
Ehlers Danlos Syndrome - Heart Disease Community
- May 09, 2010
I had a genetic test for Ehlers Danlos that came back negative. My genetic Dr. said the ge...
Ehlers danlos - Neurology Community
- Oct 14, 2015
My back goes out feels like if two fingers are twisted and stuck i can hardly walk or stand...
Chari Malformation, Ehlers-Danlos, MS mimic? - Multiple Sclerosis Community
- Apr 19, 2011
I've been meaning to post about ehlers- danlos syndrome for a while, and Addi's post about ...
Ehlers Danlos - Genetics Community
- Jul 16, 2020
Hi, My younger sister who is 14 is having debilitating back pain and mild hand and shoulder...
Hypermobility and ehlers danlos III - Chiari Malformation Community
- Mar 21, 2012
Just got back from a dr appt with my 10 year old daughter. She has hypermobility or as the ...
Ehlers-Danlos - Rare Diseases Community
- Sep 30, 2008
I am 41 yrs old and live in the Greater Cincinnati area. I have recently started having a ...
Preop appointment need help with a few things... - Chiari Malformation Community
- Jul 21, 2010
I have a basilar invagination, chiari and EDS. For the basilar invagination I have had...
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Journals about Ehlers Danlos Syndrome(1)
1127960 tn?1264559892
Diagnosis: EDS type 3

by ContradistinguishingSymptomaticKat, Jan 12, 2010 - 2 Comments
On December 22nd of 2010 i recieved the best Christmas presant of my life so far, doub...