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my daughter's 18th birthday

Sep 21, 2009 - 0 comments

It is my oldest daughter's 18th birthday and I am so unwell I don't feel that I can function. I did make it to work although I feel that I am going to pass out at any moment. I feel that it is so unfair to  my whole family and I don't know how much longer I can go on. I am going to see my gp today but I have very low expectations. Maybe I should just load up on the medication again. I have three different doctors gp, neuro and rheumatologist and each one does their own thing...help.

New week

Sep 14, 2009 - 0 comments

I am still working on getting a consult at Washington University in St Louis. My insurance company has approved it but the number of steps involved sometimes seems overwhleming especially when you don't feel well anyway. i am almost off all my medications, down to only 30mg of Cymbalta. I am really feeling the effects, but it is nice to be mostly medication free for a moment. Sometimes you don't realize when you are in the midst of it, how much the medicines affect your life. Although I feel worse, I kind of feel more like myself than I have for a long time. We'll see what the continuing results are.

I am closer to a second opinion

Sep 11, 2009 - 0 comments

My dr's office called yesterday and said that the insurance co was about ready to make a decision on my second opinion, but they wanted me to name a specific doctor not just a clinic. So I got on line and looked up the doctor names at the ms clinic at Washington U in St Louis. I am completely off my neurontin and down to 30mg of Cymbalta starting today. I am sleeping horribly and feeling pretty lousy on top of it, but at least the doctor cannot blame my symptoms on the medication. I just want to lay in a dark, cold room with a cold clothe on my forehead. I must power through work first, however. Maybe the weekend will bring some peace.

Flu shot sent me for a loop

Sep 10, 2009 - 0 comments
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flu shot



I went to Walgreen's yesterday to get my standard flu shot. I have gotten them for years and although I usually feel kind of yucky afterwards, yesterday I was a mess. I could hardly move the arm that I got the shot in and I felt miserable everywhere. I had to leave work and go home. I slept for several hours and then drug myself out of bed to go to my hair appointment (God forbid I should miss that). I made my husband drive me, though, because I didn't even feel comfortable driving myself. I wonder if anyone else has had this type of reaction?