Jan 22, 2011
Depression has taken hold over the last few months, stupid remarks from neurologist didn't help..'myoclonus is just annoying live with it' and then he discharged me.
I am having to accept that I have spinal myoclonus, reflex myoclonus and joint and muscle issues.
Thursday I saw my doctor regarding being referred back to neuro and I have decided not to bother, other than stupid remarks all they do is offer me epilepsy meds,I don't have epilepsy, I am taking clonazepam which doesn't help much with jerks and just makes me feel like the walking dead.
Yesterday I was at rheumatologist, all the tests and scans have come back normal, but she has offered to send me for rehab to help with joint and muscle issues, I'm going to try it, but as I still have myoclonus and will have for the rest of my life I can't see what they can do. Rehab in my eyes is for people who have had an accident and it gets them back to normal, not for people who have an ongoing condition but you never know.
Feeling mighty sorry for myself and that makes me feel guilty because I know there are people out there 100% worse off than me.