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Update on Pregabalin

May 02, 2011 - 1 comments

Well I'd just got my sleep pattern back to normal when I started pregabalin, it is now 4.30 in the morning and I've not had any sleep, so it looks like pregabalin isn't going to help me drop off in fact I'm wide awake and I've been like this since I started it!  I'm sick to death of starting new meds as I always have some problem with them, at least the clonazepam used to knock me out more often than not but the downside was that every day I felt like a zombie, hence stopping taking it.
I've a few other side effects with pregabalin at the moment but nothing major, I'm on a low dose but increase again next week so I'll see how it goes.
I can cope with most things but going to bed and laying there jerking because of the myoclonus every few seconds drives me mad, add not being able to sleep and I get really frustrated... tonight I took it out on my pillow and beat it up, it didn't help me sleep or stop jerking but I needed a punch bag :o)
My husband sleeps in another room and has done now for about a year, he can't sleep with me jerking as it makes him jump and wakes him up and I can't sleep with him because if he coughs or moves I jerk even more. It's a good job really with me going ten rounds with the pillow tonight I don't think he'd have been too impressed.
Well as there is no chance of sleep I think I'll just have milk and cookies and trawl the net until my body gives in and shuts down, hopefully sometime soon as I've got to be up in a couple of hours LOL.

Pregabalin

Apr 06, 2011 - 1 comments

I've been to see Professor at my local hospital on the recommendation of my rheumatologist (she discharged me to him), this Prof deals with pain and rehab. He has suggested I try pregabalin for my pain, I have read a bit about this med and it also helps with epilepsy so might also help with my myoclonus.
For the first time in 4 years I heard the word 'psychologist', it has been a long time coming but I knew sooner or later it would crop up. I told him I am not psychologically affected by my pain and jerks and felt I did not need to see a psychologist at this point. Cuckoo, cuckoo LOL.
I have to wait for a week for him to contact my doctor so that she can make out a prescription for me, I was taking clonazepam up until a few months ago when I made the decision that life as a zombie was not good. The nutty Professor has told me that I will be dizzy and possibly nauseous on pregabalin but it is not as tranquillizing as clonazepam, we'll see!
He also mentioned acupuncture but in the same sentence said but this is costly...in other words I'm not going to arrange for you to have it.  Once I start the new meds I will update on my progress...fingers crossed it helps.
In the meantime I am still a jerky girl but still managing to smile whilst in this eternal limboland :o)

I've had enough, losing the fight to fight!

Jan 22, 2011 - 2 comments

Depression has taken hold over the last few months, stupid remarks from neurologist didn't help..'myoclonus is just annoying live with it' and then he discharged me.
I am having to accept that I have spinal myoclonus, reflex myoclonus and joint and muscle issues.
Thursday I saw my doctor regarding being referred back to neuro and I have decided not to bother, other than stupid remarks all they do is offer me epilepsy meds,I don't have epilepsy, I am taking clonazepam which doesn't help much with jerks and just makes me feel like the walking dead.
Yesterday I was at rheumatologist, all the tests and scans have come back normal, but she has offered to send me for rehab to help with joint and muscle issues, I'm going to try it, but as I still have myoclonus and will have for the rest of my life I can't see what they can do. Rehab in my eyes is for people who have had an accident and it gets them back to normal, not for people who have an ongoing condition but you never know.
Feeling mighty sorry for myself and that makes me feel guilty because I know there are people out there 100% worse off than me.


RE: slightly abnormal blood tests

Dec 01, 2010 - 3 comments

My blood tests were not abnormal, the nurse hadn't sent enough samples to the lab, the letter I received was a STANDARD letter....argh I spent the weekend worrying about it.
You'd think they would have a STANDARD letter that says we need MORE BLOOD!!!!!!!!
I've now sent 2 more armfuls of blood LOL. I'll let you know what the results are when I get them back.
Suz