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Caelyx Round 1

Nov 14, 2010 - 0 comments

I have had a bad reaction to this chemo. The side effects I have had were not really explained to me and when I re-read the leaflet they are under the "less common" ones.

Day 1 (Thurs): Chemo

Day 2 (Fri): Feel well and fit. Slight heartburn. Take Gaviscon.

Day 3 (Sat): Ok, a little tired. Heartburn - gaviscon.

Day 4 (Sun) Tired. Heartburn.

Day 5 (Mon) Fatigue and nausea. Began taking anti-sickness meds (Donperidone) The nausea increases as the day progresses. It is debilitating and I spend a large part of the day in bed. I am uncomfortable and don't know what to do with myself. Didn't go to work. No appetite & only ate small amounts. Really uncomfortable, can't settle to anything. Only comfortable when lying down.

Day 6 (Tues) Nausea much worse. Drink a cup of tea and vomitted inthe loo. It was just yellowy/orangey liquid. The retching was a bit un-controllable as there was no food to bring up. Phoned chemo clinic up & nurse told me to swap my anti-sickness meds to Metroclopamide. GP did prescription. Took the tablets. No change. Nausea present all the time. Very uncomfortable. Sporadic episodes of diarrohea too & sometimes mucus diarrohea only.

Day 7 (Wed): Dad comes to paper the office. Still very nauseous but trying to ignore it. Stay in bed. Lying down is the only time I feel OK. Eating anti-sick meds but there seems little change in my nausea. Hardlying eating onlt small amounts. Boiled egg is the only thing I fancy.

Day 8 (Thurs) Can't stand it anymore. Phone chemo clinic again. They prescribe stronger anti-sick meds (Ondansetron & Cyclizine) The first one blocks the sicky message between the stomach and the brain so the brain doesn't register you feel sick. The second one is an anti-histamine. They begin to work very quickly & I get blessed relief. I am still a little agitated and uncomfortable but the sickness has diminished alot. Just before I get in bed saliva goes down my wind pipe and I have a severe choking fit. I have to force myself to breathe through it. I end up wantingto vomit but I take deep breaths and eventually calm down.

Day 9 (Fri) Sicky tablets are working :) Go to counselling & feeling much better. Only eating small amounts as I soon feel full. Beginning to get a pain just after swallowing both food and drink. As the day progresses it gets worse. Its like my food pipe is sore or bruised. Heartburn. Very hard to eat as it takes me that long my food is cold.Each mouthful is painful.

Day 10 (Sat) Unable to swallow anything without pain.Hard to describe the pain - like bruising, soreness, burning. A stabbing pain just under the sternum and mostly radiating across my back. The pain increases throughout the day. Can't eat cos of it. Pain only appears after swallowing and will last afterwards. Phone chemo nurse (Geoffrey) again who advises me to take gaviscon. (By now the taste of gaviscon make me feel sick as I am associating it with my nausea earlier in the week) I go to Boots and get some Zantac as this prevents acid heartburn. I phone back in a hour & said it hasn't touched it. I am advised to take 2 Tramadol and phone back in an hour. Am told if that doesn't work they will get me in and do blood test & a scan. The Tramadol do not work so I phone back. A different nurse (Sarah) explains that my symptoms are not severe enough to warrant an emergency admission. She advises me to go to A & E or the on-call doctor. By now I am at the end of my tether and breakdown. I feel I have been given the run around and am so tired of the battle. Anyway, I eventually get to see an "out of hours" doctor at 10.30pm on a Saturday night at Byron House. He examines my abdomen and can find nothing abnormal. He diagnoses Acid Reflux & gives me (yet some more tablets!!!!!!!!)  Lansoprazole which are Proton pump inhibitors to reduce the acid in my tummy.

Day 11 (Sun): Mananged to eat porridge with much reduced pain. It was slighty uncomfortable so I am guessing I am on the right medication.

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CA 125 tracker

Nov 06, 2010 - 0 comments

18.10.10
Ca 125 - 1,280. Was told I need to go on Caelyx

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